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GeorgeinRollaMO
Advocate
| Joined: | Tue Aug 10th, 2004 |
| Location: | Rolla, Missouri USA |
| Posts: | 476 |
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Posted: Tue Oct 30th, 2007 19:50 |
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Hi, Amy,
Once again, your new article is very impressive!!!! 
Thanks a bunch for writing them.
I tried the link to Joyce's new article and it will not work. I tried it multiple times.
Wishing all wellness!!!
Dark Vader...aka, George
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Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Ames
Member in Phase 3
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Posted: Tue Oct 30th, 2007 20:09 |
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Thanks George...
Right,
I just told Joyce about the link myself, and she said:
"Unforunately, AOL goes through spells, where for a few seconds or minutes or longer, a link won't work to one of my articles on my web site. It hasn't happened in quite a while, but seems to be happening with my new article right now (the last two days it has been fine). Usually, you can still get to them by google, though in this case it is so new, it doesn't seem to be turning up on a search.
I suggest trying again in a few seconds if it doesn't work and if it still doesn't work try an hour or two later. Unfortunately, they no longer give any support for their free web site service that I have used for the last 10 years"
Maybe Paul can help her fix that situation later tonight.......
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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jcwat101
Research Professional
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Posted: Tue Oct 30th, 2007 21:31 |
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I have asked someone to put a pdf of it online as a backup and I'll provide the link when I get it. I think the original link will probably work later (it worked fine during the two days before).
But I think the pdf backup will be good to have in case it happens again.
Here is the new pdf link: http://winmlm.neostrada.pl/mp/jw/BrainLesions.pdf
Joyce
Last edited on Tue Oct 30th, 2007 22:42 by jcwat101
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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jcwat101
Research Professional
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Posted: Wed Oct 31st, 2007 16:51 |
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I just wanted to mention that I made about 5 minor corrections/clarifications (probably things only I would notice) in that article and that the original link now works and hopefully will continue to.
The pdf version will probably be corrected later today.
Joyce Waterhouse
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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Ames
Member in Phase 3
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Posted: Thu Nov 1st, 2007 01:14 |
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Congrats again Joyce..great article!
I'm writing because there are TWO new articles up on Bacteriality.
One is an interview with Dr. Grey Blaney - MP Physician:
http://bacteriality.com/2007/10/31/blaney/
And the other article is called "Bacteria vs. genes: the spread of chronic disease in families."
http://bacteriality.com/2007/10/31/family/
It's the article about familial aggregation and successive mutation that I mentioned earlier.
Thanks for readin'!
Amy
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Rico
Member in Phase 3
| Joined: | Wed May 31st, 2006 |
| Location: | |
| Posts: | 239 |
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Posted: Thu Nov 1st, 2007 01:25 |
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Wow! You're amazing, Amy! I look forward to your articles almost as much as Dr Marshall's  Thanks!
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No diagnosis/some symptoms; wife with Sarc on MP; Olm 40mg q6h| avoid D| 1,25D=63 25D=32 (May 2006) 1,25D=44; 25D=10(Dec 2006)PhaseI(May06) PhaseII(Aug06) PhaseIII(Aug07)
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Ames
Member in Phase 3
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Posted: Thu Nov 1st, 2007 13:32 |
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On Amy's behalf, thanks, Rico. These two were actually some of my favorite articles (thus far!).
Some of you have complained about the small text size on bacteriality. That's something we hope to address shortly. In the meantime, if you want to manually change the text size of your browser window, try following these instructions:
http://www.metnet.edu/textsize.html
FYI, this change is probably easiest in the Firefox/Safari browser.
Paul
EDIT: Oops, I'm logged in as Amy.Last edited on Thu Nov 1st, 2007 13:36 by Ames
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Dr Trevor Marshall
Research Team
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Posted: Thu Nov 1st, 2007 15:06 |
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You can change the size of the displayed text in Windows by holding down the Control key and rolling the roller on your mouse.
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Frans
Member in Phase 2
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Posted: Thu Nov 1st, 2007 15:52 |
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Ames,
I just read the interview with dr Blaney and it is really interesting. It would however be interesting to add a comment at the top of the article about how many patients dr Blaney is actually treating at this point. I remember from during the LA conference that that number was about 160 or more. It will blow people away. Or at least, it did that to me when I heard it...
By the way, thanks for making my time at home (because of the flu) a little better with all this stuff to read  Don't know how to keep up when I start working again
Sincerely, Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Ames
Member in Phase 3
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Posted: Mon Nov 5th, 2007 01:07 |
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Frans- that a good point. I would love to know how many patients he has on the MP and I should have thought to ask that! But Dr. Blaney is super, super, busy so I have no idea if I will be able to get in touch with him and ask the question (I will try).
There is a new patient interview up with MP patient Shirley J who is known here as SAJ.
http://bacteriality.com/2007/11/04/interview7/
Best,
Amy
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Ames
Member in Phase 3
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Posted: Wed Nov 7th, 2007 13:48 |
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Hi guys,
Remember David Bradley? He wrote an article about the MP on his blog Sciencebase about a month ago. Now his blog is up for the award "best science blog" and I think it would be great if he wins because he has a link to Bacteriality on his site and also may write about the MP in the future because we keep in touch and he's interested in the subject.
If you want to vote go here:
http://2007.weblogawards.org/polls/best-science-blog-1.php
Vote for Sciencebase.
Best,
Amy
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Dr Trevor Marshall
Research Team
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Posted: Wed Nov 7th, 2007 14:02 |
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Amy,
I registered my vote for ScienceBase
I found it interesting that in today's blog David Bradley says he suffers from Asthma, and that he is "still on the standard dose of twice-daily Beclomethasone."
I used exactly the same Beclomethasone to control my most recent lung immunopathology. It is quite a stong steroid, very effective in the sinuses and lungs, and sold over-the-counter in the UK. I found one dose was enough to knock the immunopathology down for about 8 hours. We may have an influential Th1 sufferer here...
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Ames
Member in Phase 3
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Posted: Wed Nov 7th, 2007 14:11 |
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Trevor,
Very interesting. I had not read that myself. In the coming days I'll shoot him an email on the subject!
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Dr Trevor Marshall
Research Team
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Posted: Wed Nov 7th, 2007 14:25 |
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Amy,
Let's not contact him again. David knows about the MP, and would come here if he needs to. We don't want to be seen to be "pushy."
It is so frustrating that there are so many paradigm barriers that we have broken through all at once, and yet other folk have to deal with understanding them one at a time...
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arhayw
Member in Phase 3
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Posted: Wed Nov 7th, 2007 16:56 |
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I didn't know there was such a thing as a best science blog award. It's too late now, but how about keeping a bookmark here for next year and campaign for a Bacteriality nomination!
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CFS FM hypothyroid 125D56 25D99 Ph1Jun04 25D31(Jul08)25D13(Aug08) Ph2Mar05 Ph3May06 abx brk Sep06 r/t KFTs Ph1Dec06 ModPh2Jul07 Ph1Jan08 25D37(Feb08) abx brk Feb08 r/t >sxs Cytomel Calcium NoIRs occ outings covered
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Ames
Member in Phase 3
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Posted: Thu Nov 8th, 2007 02:10 |
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Aw thanks arhayw, that's very nice of you!
Just announcing that two new articles are up:
"Of mice and men: Are the scientific studies you read accurate?"
http://bacteriality.com/2007/11/07/mice/
And also an interview with Carole Morgan, who is Carole the board moderator on this site.
http://bacteriality.com/2007/11/08/interview8/
Best,
AmyLast edited on Thu Nov 8th, 2007 02:50 by Ames
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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jcwat101
Research Professional
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Posted: Sat Nov 10th, 2007 14:03 |
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I just wanted to say that I have improved the references (adding links to the ones with free full text), and adding one reference (#22) and two or three other minor changes to my article. Last week before the AAEM conference, I didn't have time to correct the references, which I discovered had several errors.
So, anyway, if you are going to give a copy to a doctor etc..., you might want to print out a new copy of the article:
Vitamin D, the Vitamin D Receptor and Chronic Disease --
Brain Lesions, Vascular Calcification and Osteoporosis:
Two Views of Vitamin D Supplementation and Parathyroid Hormone
http://www.members.aol.com/SynergyHN/shpt
I will try to have the pdf version corrected within the next 24 hours. It will be at: http://winmlm.neostrada.pl/mp/jw/BrainLesions.pdf
Joyce Waterhouse
Last edited on Sat Nov 10th, 2007 18:43 by jcwat101
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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Ames
Member in Phase 3
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Posted: Sat Nov 10th, 2007 20:47 |
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Hi!
There is also a new interview up on Bacteriality...with Julia Greer (Julia on this site). The interview was conducted in written format. I sent Julia the questions and she responded with witty and insightful comments - I'm impressed. This is one of my favorite interviews and I didn't even write it!
http://bacteriality.com/2007/11/10/interview9/
Enjoy!
Amy
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Ames
Member in Phase 3
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Posted: Sat Nov 10th, 2007 22:08 |
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Oh, yet another interview to annouce...one with Paul Albert. Somehow I knew his story before even asking the questions...
http://bacteriality.com/2007/11/10/interview10/
Don't forget to check out Julia's interview too (link in the post above this one)Last edited on Sun Nov 11th, 2007 00:27 by Ames
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Rico
Member in Phase 3
| Joined: | Wed May 31st, 2006 |
| Location: | |
| Posts: | 239 |
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Offline
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Posted: Sat Nov 10th, 2007 23:00 |
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Loved the end to your latest interview, Amy
Rest is good too, of course...some of Paul's issues resonate with both me and my wife. Thanks.
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No diagnosis/some symptoms; wife with Sarc on MP; Olm 40mg q6h| avoid D| 1,25D=63 25D=32 (May 2006) 1,25D=44; 25D=10(Dec 2006)PhaseI(May06) PhaseII(Aug06) PhaseIII(Aug07)
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