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Joy
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| Joined: | Mon Aug 1st, 2005 |
| Location: | Seattle Area, USA |
| Posts: | 250 |
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Posted: Sun May 13th, 2007 23:16 |
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I'm thinking about having a colonoscopy done for the first time. Doctor's do recommend it for people over 50, and I have a couple of sore spots along the top of my colon, roughly around where it bends, above the hip bones, which are a little worse on the MP (one has been there for years). So probably time to get it looked into.
Has anyone experienced colonoscopy while doing the MP? Is it compatible with the meds we're taking? Is there anything I should know about the anesthetics they administer? I'm going to have a consult with the doctor who does it in another week or so, so want to know what to ask about.
Thanks,
JoyLast edited on Sun May 13th, 2007 23:17 by Joy
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CFS, FM, MCS, RA, Uveitis, Neuropathy, MGUS, porphyria, low thyroid.
Non-MP Meds: Armour Thyroid, Lotemax steroid eye drop (3/day). Milk thistle, lutein, calcium, probiotics. NoIRs, gloves, hat.
Began Ph 1 9/06, Phase 2 1/07. 25D: 32,17,5,4,4
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Kas
Member in Phase 2
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Posted: Sun May 13th, 2007 23:30 |
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I had a colonoscopy done about 19 months ago and the gastro who did it was very pro the MP and encouraged me to give it a try. However, he did not want me on the Benicar until afterwards, as he felt my BP was already very low and that lowering it further would not bode well with the sedative used. I was advised not to take any meds during the cleaning out period and on the day of the test, had nothing to eat or drink until afterwards, so being off the MP at that point was probably a good idea. Due to having no spleen, I was given an intravenous shot of an antibiotic, although I doubted I really needed it- just a precaution, I guess.
Speak to your gastroenterologist and he/she will advise you about what is best. BTW, I had been on pulsed mino for a few months before my test, and to my doctor's surprise, I showed absolutely no inflammation in my colon or esophagus and had no polyps anywhere. It was a totally 'clean' test, which as amazing, as I had had one a few years before which showed considerable inflammation due to my IBS. I am therefore sure that the MP should clear things up, but having a colonoscopy at age 50 is an excellent idea and I would certainly not postpone it.
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Sarc Dx by splenectomy 03- Lungs, lymph nodes, liver. Non MP meds: natural progesterone cream three weeks a month; cal/mag; probiotics; milk thistle daily; cranberry caps prn; quercetin prn.Noirs outdoors and under flourescent work lights, Spectra 3 cream
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jrfoutin
Research Team
| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
| Posts: | 3877 |
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Posted: Sun May 13th, 2007 23:43 |
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Joy,
This is another one of those tests that some do and some do not.
My personal take on it is that the test is designed to look for signs of inflammatory disease processes, specifically some that stray into the cancer zone. My personal feeling is that everything that the test might find would lead me to believe I am already working the problem with the MP, so I wonder what is the point of the test if the treatment of choice is already underway?
But that is my personal opinion based on my perspective of the MP and where inflammatory disease can head. Just one of my favorite quotes about inflammation from 2006:
"Everybody knows inflammation induces Cancer"- Francesco Marincola MD
Senior Investigator, NIH
University of California-San Diego
Frontiers of Clinical Investigation Conference
Host Defense 2006: From Bench to Bedside
Oct 5-7 2006 La Jolla, CA
This colonoscopy link has some alternative insights from others on the MP who have some experience with actually doing a colonoscopy.
Best to you Joy--Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2
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IngeD
Member Advocate
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Posted: Sun May 13th, 2007 23:53 |
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I am glad that this subject has been raised for discussion because I am due to have another colonoscopy next year.
My specialist explained to me that colon cancer is the most preventable cancer there is. It is usually caused by polyps becoming cancerous and polyps are easy to detect AND remove during colonoscopies. His view is that we inherit the tendencies to produce polyps and that once we know that we do produce them we should have routine colonoscopies every 3 to 5 years.
During autopsy it was discovered that my father had a tumor in the colon which apparently puts me into the at risk group. Then during my first colonoscopy several polyps were removed so I was told the risk of my body producing further polyps was high.
Question is...where do polyps come from? Are they also created by the Th1 disease/CWD bacteria ? If so then I guess we don't need further colonoscopies!
Inge.
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Rickettsiosis per neurop chron bronch adhesions IBS pre-diabetes HTN 125D51 Ph1Jan07 25D26.4(Dec06) 25D12.8 (Jun07) 25D8.4 (Jun08) Valium NoIRs limited outings covered lo lux home Ph3
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P.Bear R.N.
Research Team
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Posted: Mon May 14th, 2007 04:46 |
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Joy, My feeling is that after 50 years of age a colonoscopy is a reasonable thing to have done, since it is not that hard to have polyps removed and examined if they have developed. They usually only give morphine or demerol with versed for the procedure. (don't use nitrous oxide with MCS) The bowel prep was harder on me than the actual procedure. You should be able to continue all the MP meds, but will need someone to drive or take you home.
best, P.B.
Last edited on Mon May 14th, 2007 04:47 by P.Bear R.N.
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 571 |
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Posted: Mon May 14th, 2007 11:49 |
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| P.Bear, Thanks for your remarks. I was due a colonoscopy at the beginning of the year and was unable to keep it b/c of the extreme light sensitivity I was experiencing. And I was just going to let it pass while on the MP, but because of your remarks, I will reschedule, as my light sensitivity is not so great. Thanks again, Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2-5/25/08; Temazepam 9/26/08; Ph2Oct29
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LH1953
Member in Phase 3
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Posted: Wed May 16th, 2007 01:03 |
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Anyone: Please feel free to private message me so we can talk by phone.
If you have light issues, the doctors will work with you. When I had mine done, I never saw anyone. I kept my glasses on and my hat over my face the whole time. I had 3 done in a 12 month period BEFORE the MP. My last one was when I started with rectal bleeding back in the first 3 months of the protocol.
I was awake for 3 of the 4, but the last time being so ill from 1st starting the MP, I wanted to be put out. (I wanted to be awake for the others). When it was over, the doctor made sure I was covered from any light. I brought a dark towel with me to keep my head and face covered. This helped with the car ride too. I was extremely light sensitive back then, (not as much now ). This also helped me with the MCS issues.
The BEST way when having a colon. is to eat light the day or two before the prep. REMEMBER, the more that goes IN, has to come OUT! This is what makes the Prep so uncomfortable. REMEMBER to tell the doc NO EPI, just in case.
Best to all, Lori
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Lyme, MCS, IC, asthma, reflux, UC, osteopenia, hypothy, EBV, 1,25D48, MP 8/05, alupent inhaler, PBX, diazepam, fioricet, Ph3 7/06, NoIRs, limited outings covered up, low lux home, 25D4, 1,25D24
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