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Rich23
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Posted: Sat Jan 20th, 2007 09:25 |
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I just thought it d be interesting to see if anyone does anything of a supportive nature like relaxation, tai chi or anything and how that helps or not. It would be interesting as I think it is fairly wel shown that the immune system responds to positive emotions although not all experiments were reloable due to vested interest but on the whole the info is there.
Having had and having neuro symptoms I guess there are times when nothing seems to help when we go through that but other opinions would be interesting.
Best wishes to all
Rich
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Rich : chest pain. Lyme 16 months (as of Apr 2006). Nothing helped. 25(OH)D 18.5 ng/ml. 1,25 (OH)2D 37pg/ml not frozen so could be higher. MP begun 1/7/06. Suspected mitochondrial failure issues- heart, energy levels.
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Carole
Board Staff
| Joined: | Tue Jul 20th, 2004 |
| Location: | Indiana USA |
| Posts: | 631 |
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Posted: Sat Jan 20th, 2007 13:14 |
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Hello, Rich!
I had always been engaged throughout my life in various forms of exercise with structured programs and relaxation techniques; but during the past few years, experiencing the miracle of healing and enjoying new-found wellness from the MP provide the positive support that satisfies my emotional needs.
I look forward to soon returning to a more formal exercise program; but in the meantime, "smelling the roses" from this long-awaited renewal is my euphoric confirmation.
This link may address past documentations that might be of interest--
range of motion exercises
Best wishes and take care! . . . Carole 
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PWC 50+ yrs| 20+ CFS FM Pituitary Thyroid IBS Cardiac OA Migraines +ANA Osteoporosis 2/04 Mediastinoscopy ~Sarc Story |1/04 1/06: 125D=85,34; 25D=41,14| ACE=68,43|
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tickbite
Guest
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Posted: Sat Jan 20th, 2007 17:13 |
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Hi!
I've practiced yoga for a few years. Now more than ever my practice has pyschologically and emotionally helped me to realize the intent behind my illness and recovery. Like I tell a lot of people, yoga is much much more than a physical exercise. Yoga (in my practice) is:
(1) Yama (The five "abstentions"): violence, lying, theft, (illicit) sex, and possessions
(2) Niyama (The five "observances"): purity, contentment, austerities, study, and surrender to god
(3) Asana: Literally means "seat", and in Patanjali's Sutras refers to seated positions used for meditation. Later, with the rise of Hatha yoga, asana came to refer to all the "postures"
(4) Pranayama ("Life Force Control"): Control of prāna, life force, or vital energy
(5) Pratyahara ("Abstraction"): Reversal of the sense organs
(6) Dharana ("Concentration"): Fixing the attention on a single object
(7) Dhyana ("Meditation"): Intense contemplation of the true nature of reality
(8) Samadhi ("Liberation"): Super-conscious state of enlightenment
wiki. Most people are familiar with Asana, the physical postures. As you can see meditation and concentration attainments come in very handy when dealing with our body's healing. Persons such as Jon Kabat-Zinn (Full Catastrophe Living) use meditation and mindfullness practices to promote well-being and positive mental attitudes and all of the other "new age" words most people are afraid of hearing because it means to be aware of your being
As far as yoga promoting physical wellness, i'm sure everyone knows of it's potential. However, it's true potential on all levels is what is not well understood. Even I am an amateur and have much more to learn. I know that yoga stimulates the body's own "innate" functioning. Yoga is very integrative in terms of stimulating lymphatic fluid movement, bile and mucousal excretion/creation, digestion, cellular/nutrient movement, CSF homogenation/pressure equalization (kinda like self achieved cranio osteopathy) and placating attention to micro and macro regions of the physical self. All in my humble opinion not that I can substantiate that with a pubmed publication I guess for those who are interested, you'll have to find out for yourself.
~Grego
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"Lyme","CFS", Meningitis
Phase3 8-2-07, MP on hold 11/2007
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prugg21
Health Professional
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Posted: Sat Jan 20th, 2007 18:10 |
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Hi Rich,
What has actually helped improve my mood before when I'm extremely irritable, tense, frustrated, etc. is to do something creative that occupies my entire mind, body and soul for a period of time. I've found you don't have to be good at it, you just really have to like doing it, whatever it is.
For me, it can be colored pencil drawing, needlepoint or making things like quilts, pillows and clothes. But for others it could be any number of other things such as night time gardening, painting or other artwork or crafts, playing a musical instrument, writing songs, poetry, short stories. Oh and let's not forget journal writing, that's really helpful in picking up my mood, just to write about everything you're feeling sometimes can be a huge release as well as you get more in touch with yourself and not take out your feelings on your family and loved ones.
I hope you find what's fitting for you.
Pam Last edited on Sat Jan 20th, 2007 18:11 by prugg21
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MCS/CFS/FM,22+yrs,Gerd,migraines,insomnia,avoiding light & D,NoIRS,benicar 3/30/06 40mg Q4-6H,mino,4/18/06,mod/ph2-
10/17/06,probx,estriol, 3/06-25D=27,9/06-25D=26,11/06-25D=21,4/07-25D=22,7/07-25D=19
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kathleen
Guest
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Posted: Sat Jan 20th, 2007 19:34 |
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Hi Rich,
I've been doing Buddhist meditation for almost 20 years now. It doesn't kill bacteria, but it's helped me with patience, and clarity, which in turn is good for compliance on the MP. Then the meds can help my immune system to do the killing.
I also use inter library loan alot and read very current books whihc keeps me from feeling quite so removed from everything, and I get new and old movies from Netflix. Then when I occasionally see people it's not like I'm living on some other planet.
Best luck and no giving up - Kathleen
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CFS '86, LTD '86 (50 yrs old)pacemaker - total heart block '99 fatigue, cognitive, sleep, digestion, dysautonomia, weakness, headache, tinnitus, IC, new anemia 9/9/04 D,25 44 - D,125 76 4/05 D,25 24 4/05 Ben 40mg/6hrs, Mod Ph 2
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tgritton
Member in Phase 3
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Posted: Sat Jan 20th, 2007 22:33 |
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| On several occasions during my early MP I used a relaxation audio on an iPod to relieve cardiac arrhythmias (very irregular heartbeats). This had a very positive effect on my mood in that it lessened anxiety. Last edited on Sat Jan 20th, 2007 22:43 by tgritton
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Lyme arrhythmia 125D76 25D39 Benicar Nov05 ModPh1May06 ModPh2Oct06 Ph2Jun07 Ph3Dec07 25D<4(Aug08) 0Meds 0Supps Lite90%<30lx otherwise NoIRs 2layer clothes gloves hat +-ZnO
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Rich23
Guest
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Posted: Sun Jan 21st, 2007 11:27 |
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Hi folks Im pleased that you are finding useful adjuncts to the Mp. Id be interested to see overall whether this stuff boosts the immune system and has a result in terms of treatment length etc although without a big controlled study we couldnt tell.
I personally have just started Contemplative Prayer..a Western method very similar in technique to Eastern meditations..and even though its been only for a short time as yet I am finding more peace as a sort of background level and my wife says im different although she cant put her finger on what that actually is.
Best wishes to you all
Rich
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Rich : chest pain. Lyme 16 months (as of Apr 2006). Nothing helped. 25(OH)D 18.5 ng/ml. 1,25 (OH)2D 37pg/ml not frozen so could be higher. MP begun 1/7/06. Suspected mitochondrial failure issues- heart, energy levels.
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tickbite
Guest
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Posted: Sun Jan 21st, 2007 16:14 |
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"Id be interested to see overall whether this stuff boosts the immune system and has a result in terms of treatment length etc although without a big controlled study we couldnt tell."
In which case Rich, perhaps you would find this book interesting:
"Healing and the Mind"
Part III is extremely interesting:
chemical communicators with candice pert
emotions and the immune system with margaret kemmeny
the brain and the immune system with robert ader
all PhDs
if you look hard enough the books and research are already out there.
best,
~Grego
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"Lyme","CFS", Meningitis
Phase3 8-2-07, MP on hold 11/2007
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Rich23
Guest
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Posted: Mon Jan 22nd, 2007 11:46 |
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Hi Grego
Thnaks for your reply. I have a lot of stuff like that..I was specifically referring to the effect these approaches may have on us CWD bacteria sufferers if any. Unfortunately we are not in a position to measure that yet but it would be useful to correlate length of time ill, length of time and type of complementary work and MP duration to see.
Al the best
Rich
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Rich : chest pain. Lyme 16 months (as of Apr 2006). Nothing helped. 25(OH)D 18.5 ng/ml. 1,25 (OH)2D 37pg/ml not frozen so could be higher. MP begun 1/7/06. Suspected mitochondrial failure issues- heart, energy levels.
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Joy
Guest
| Joined: | Mon Aug 1st, 2005 |
| Location: | Seattle Area, USA |
| Posts: | 250 |
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Posted: Mon Jan 22nd, 2007 13:46 |
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Hi Rich. I think contemplative prayer sounds great; it is similar to other types of meditation, I think. I have done a little of that recently in sessions at a beautiful church -- the beauty of the surroundings helps a lot, though I'd imagine you could set up your own space with a candle, etc. (though I've found that candles hurt my eyes now that I'm on the MP).
One thing that I find immediately helps with wound up emotional states is something called EFT, or Emotional Freedom Technique. It is essentially a quick tapping routine whilst repeating the negative thought, whatever it is that's bothering you. You tap at acupuncture meridian points which supposedly releases the negative impact of the emotion as you state it. It actually works pretty instantaneously for all sorts of stress situations. Check out http://www.mercola.com/forms/eftcourse.htm to see how it's done. I just do the abbreviated, 7-point tap, only takes a minute.
Best regards,
Joy
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CFS, FM, MCS, RA, Uveitis, Neuropathy, MGUS, porphyria, low thyroid.
Non-MP Meds: Armour Thyroid, Lotemax steroid eye drop (3/day). Milk thistle, lutein, calcium, probiotics. NoIRs, gloves, hat.
Began Ph 1 9/06, Phase 2 1/07. 25D: 32,17,5,4,4
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jillian
Member in Phase 2
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Posted: Tue Jan 23rd, 2007 06:50 |
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Rich,
I actively cultivate an "attitude of gratitude." 
Whenever I get moody I will stop and think (meditate) about what in this situation can I be grateful for. It rarely doesn't work; but it can be tough depending on my immune response!
I also listen to nature sound cds--without music, like these http://www.somersetent.com/store/SearchResult.aspx?CategoryID=20
from Dan Gibson. I love music, but it can be a real stressor if my immune response is high.
'til later,
Jillian
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PrimryDX-PulmoSarc79,FMS,CFIDS,etc,disabled93. AvoidD/Noirs Aug02. Oct02: 1,25D=42 NTfrzen; Apr05:25D=10. P1 Oct05-Feb06; ModP2C Feb-Nov06; P2 Nov14-Dec06; ModP2BSS Jan-Mar07; ModP2CBSS Mar07-. Noirs & total light control in house.
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Rich23
Guest
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Posted: Tue Jan 23rd, 2007 16:22 |
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Hi Joy and Jillian
Thank you for your posts.
At the moment my cenring prayer are done laying down indoors due to my level of illness but your church sounds beautiful. Ive tried the EFt tsuff myself but it didnt help..certain peple suit certain methods I guess.
Music CDs of nature sounds are great arent they? I also like chants and devotional songs.
I think gratitude is importnat too, its easy to lose track of the fact that the world suffers outside our little worlds when our own trials are great.
So hers to you both ..toasted with a half full cup
Rich
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Rich : chest pain. Lyme 16 months (as of Apr 2006). Nothing helped. 25(OH)D 18.5 ng/ml. 1,25 (OH)2D 37pg/ml not frozen so could be higher. MP begun 1/7/06. Suspected mitochondrial failure issues- heart, energy levels.
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Guss Wilkinson
Member in Phase 3
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Posted: Tue Jan 23rd, 2007 17:09 |
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Hi All
It is not always possible to do anything about the mood swings. Sometimes, you just are in a 'hair-trigger' mode ready to bite the heads off your loved ones for having the audacity to actually breathe in the same room as you; or just the slightest set back will send you into a wirlpool of self-pity.
What helped me is to understand the real cause of the mood, take a deep breath and count to ten before you bite the wife's head off, or get out the razor blades. It actually takes practice.
You have to get used to apologising a lot - I have said some pretty hurtful things to a lot of people that mean a lot to me. You also have to make those around you realise that they are the true heroes just for putting up with you.
It does help to distract yourself from your plight - in my case I did it with study and socialising (both with friends and through the Karate club that I run with my wife). Exercise helps to (even in a very limited form).
All of these things take great effort. What I have found, though, is that there is an energy reserve. Your brain will tell you to stop well before you actually have to stop, so look very hard to try and find that reserve. You will feel that you are running on fumes most of the time but there is a distinct quality of life improvement if you make it a habbit to stop listening to your body/mind.
Then there is the drinkies. Having a couple of glasses of wine to your meal, or beer with you friends or even something stronger for those special occasions actually gave me a brief feeling of normality - doesn't work for all, but it did for me.
Thankfully, all this is behind me now.
I knew very early on that the MP was/is the right thing and knowing that you have taken command of your own illness, instead of being a victim, is great fuel for the determination.
I hope this helps.
Cheers
Guss
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Dx Sarc May 2002 Stage 2. Estimate Sarc since 1987. Lungs, Joints, Kidneys & GI. Two failed Prednisone courses. (Started MP: Oct 2003 - D25...31ng/ml, 1-25D...76 pg/ml), Phase III since July 2004; BP 100/60. Feeling pretty good!
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