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drvikki
Health Professional
| Joined: | Fri Jun 24th, 2005 |
| Location: | California USA |
| Posts: | 295 |
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Posted: Thu Feb 2nd, 2006 16:42 |
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I am not able to be on the computer for very long due to light sensitivity, even though I have it turned WAY down and can hardly see and use 2% Noirs for the computer and tv. I have tried to do a search specifically about flourescent lights.
When I go to a store with flourescent lights, evn with my baseball cap, hood, 2% Noirs and sometimes a pair of amber sunglasses under those, I feel very sick within a few minutes.
Any info or link would be appreciated. Thank you.
Vikki
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Lyme 19 yrs/back neck pain diges headaches fatigue tachycard tinnitis| Nov04 D1,25=65 D25=26/Jun07 D25 = 4 light avoid NOIRS/K cream/PH2 11/7/05/ PH3 6/8/06/probiotics/milk thistle/progesterone cream - 1/8 tsp bid/ambien/benadryl/quer prn
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patrickburke
Member Advocate
| Joined: | Mon Jul 12th, 2004 |
| Location: | United Kingdom |
| Posts: | 409 |
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Posted: Thu Feb 2nd, 2006 18:06 |
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Hi Vikki,
I used to have a similar problem with fluorescents. The conclusion that I drew was that my skin was reacting to them (and any other light including IR) as no amount of eye protection (including total blackout) seemed to help. Fluorescent seemed to be the worst form of artificial light though and I suspect that is due to the high amount of high energy blue light that they emit.
The only way to avoid the problem altogether was to try and avoid all forms of light (obviously impossible to actually achieve) falling on any part of my body, either clothed or unclothed. E.g. hot ovens and radiators etc warming my trousered legs would even affect me. I had to make sure that all of my clothing passed the "light bulb test" IE hold them up to a light bulb and make sure that no visible light at least can be seen through them. Obviously I tried to avoid as much light as possible at work and lived in total blackout at home in the evenings and at the weekend.
I grew a beard which helped to cover more skin as I found k cream did not help. I don't think you will be able to do that though  . Even small skin surfaces would react eg I had to make sure that even my socks passed the light bulb test.
But best of all I had a lot of help from altering my Benicar dosing regime. If I knew that I was going to encounter any fluorescents I would start increasing my dose to 20mg q2h at least 2 h before the exposure was due. I would continue until I felt the flare subsiding which would usually be around 3 hours after getting into my dark cool home and resting.
I was effectively blinded for 30 minutes once by a 2-3 second sideways glance at a fluorescent tube  .
I know that much of the above is standard MP practice anyway.
The good news is that I am at last having to start turning up the lights again.
Good luck,
Pat.
PS Have you tried internet shopping? Its pretty good these days.
see also re Store lights and heat
Light Suggestions is the 4th post down in AVOIDING SUNLIGHT and BRIGHT LIGHTS
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Sarcoidosis/lungs; Ph1 May05; Ph2 Jun05; Ph3 Dec05; No ABX 2/08; No D tests; covered since 6/04; Noirs off 6/07; Min light avoidance| Pat's Story|
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drvikki
Health Professional
| Joined: | Fri Jun 24th, 2005 |
| Location: | California USA |
| Posts: | 295 |
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Posted: Thu Feb 2nd, 2006 20:11 |
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Patrick,
Thank you for your experiences with the lights - not just flourescents. It seems even after being in a store for a few minutes, my eyes start fading in and out of blackness and I feel very sick.
I'm usually covered by two to three layers of clothing and heavy denims with the hooded jacket and baseball cap and of course the Noirs, I would think I would pass your light test, but will either try all your suggestions or stay at home.
I don't seem to be affected driving to and from work (5 minutes), or to the doctor's office 15 minutes, but the flourescents are pretty immediate and intense.
I will try the Benicar dosing if I have to go to a store. I do love getting out with my husband after it gets dark, although we're buyers, not shoppers. But this reaction is not worth it.
I really do appreciate your help,
Vikki
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Lyme 19 yrs/back neck pain diges headaches fatigue tachycard tinnitis| Nov04 D1,25=65 D25=26/Jun07 D25 = 4 light avoid NOIRS/K cream/PH2 11/7/05/ PH3 6/8/06/probiotics/milk thistle/progesterone cream - 1/8 tsp bid/ambien/benadryl/quer prn
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kathleen
Guest
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Posted: Thu Feb 2nd, 2006 23:21 |
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Hi,
I also had a very dramatic reaction to the strong florescent lights in big stores when I began the MP. No matter what I did, except not to go in. Now, after 16 months on the MP I can go into Barnes and Noble for a short while with the darkest Noirs on, which is great, occasionally. CVS is still a big problem... go figure?
The biggest problem is that I need the darkest glasses so that I won't begin to faint, but then I can't see much, so it's still pretty pointless. The temptation to peek under the glasses is huge, and then, the fainting begins.
So for now, I try to find stores with the old fashioned less bright florescents and get in and out quickly.
Best luck, no giving up, Kathleen
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CFS '86, LTD '86 (50 yrs old)pacemaker - total heart block '99 fatigue, cognitive, sleep, digestion, dysautonomia, weakness, headache, tinnitus, IC, new anemia 9/9/04 D,25 44 - D,125 76 4/05 D,25 24 4/05 Ben 40mg/6hrs, Mod Ph 2
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drvikki
Health Professional
| Joined: | Fri Jun 24th, 2005 |
| Location: | California USA |
| Posts: | 295 |
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Posted: Sun Feb 5th, 2006 17:40 |
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Kathleen,
Thank you for your reply. I do appreciate hearing other's experiences. It is good to know that with time, things DO change - both with you and Patrick and so many other people.
Good luck on your journey as well,
Vikki
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Lyme 19 yrs/back neck pain diges headaches fatigue tachycard tinnitis| Nov04 D1,25=65 D25=26/Jun07 D25 = 4 light avoid NOIRS/K cream/PH2 11/7/05/ PH3 6/8/06/probiotics/milk thistle/progesterone cream - 1/8 tsp bid/ambien/benadryl/quer prn
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LeAnne
Member in Phase 3
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Posted: Wed Apr 12th, 2006 16:33 |
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When going to the grocery store or when I am around flourescent lighting, I wear my dark Noirs. When I don't wear them, I get dizzy. This symptom of light sensitivity comes and goes, but seem to be improving as I progress on the protocol.
LeAnne
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Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
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CJ
Member in Phase 3
| Joined: | Fri Apr 1st, 2005 |
| Location: | Byron, Michigan USA |
| Posts: | 254 |
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Posted: Wed Apr 12th, 2006 20:04 |
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| It's amazing how our light sensitivities can vary. I work part time in the evening in a grocery store.( 4-8 hour shifts 20-35 hrs a week) The Fluorescents don't bother me. I wear long sleeves and use K cream on face and hands, I wear my lightesrNoIRs. There are some halogen lights in my dept and they are awful I believe they bother me worse than sunlight. Sunlight often makes me nauseous. Last edited on Wed Apr 12th, 2006 20:05 by CJ
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Saroidosis/lungs, 25D7 (8/07) Spireva,Ibuprofen, NoIRs, lite exp r/t work
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lionel forbes
Member in Phase 3
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Posted: Thu Apr 13th, 2006 03:17 |
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      before i started mp i made shirts out of nylon lycra that was certified 97% uv resistant (it is uv light that produces d on the skin) . this fabric is marketed by eclipse fabrics, australia.if you do the same as i did, make sure the fabric is certified by a radiation lab.in australia the cert code is 1499. please be aware that many fabrics will pass a lot of light through it, even if worn thickly. the only way to check is to use a lux(light) meter (purchased from an electronics shop) and the measurement should be below 30 lux on the skin side.
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Sarcoidosis/lungs via biopsy 125D28 25D24 Ph1Jan05 Ph2Mar05 Ph3Aug/06 no other meds 25D7.8 (Nov07) NoIRs cover up
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Dr Trevor Marshall
Research Team
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Posted: Thu Apr 13th, 2006 07:02 |
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Lionel,
This is totally incorrect. It is not just UV light that produces Vitamin D in the skin - it is all light. Yes, I know that many of the papers you will read state otherwise, but they are incorrect. This pragma has been repeated time and time again until everybody believes it, yet few labs have actually bothered to question it. Bad science indeed.
It becomes rapidly obvious to anybody who recovers from these diseases that ALL light, even infrared, has enough energy to affect patients with Th1 disease. Take a look at our FAQ for "keratinocytes" and you will find some papers which will open your eyes on this.
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lionel forbes
Member in Phase 3
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Posted: Wed Apr 19th, 2006 02:14 |
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| trevor, do you think that if the fabric i used is highly uv resistant, that it may be resistant to other light, considering that uv is the highest energy type of light?
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Sarcoidosis/lungs via biopsy 125D28 25D24 Ph1Jan05 Ph2Mar05 Ph3Aug/06 no other meds 25D7.8 (Nov07) NoIRs cover up
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19456 |
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Posted: Wed Apr 19th, 2006 02:39 |
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Lionel
To see if a material is suitable, hold it to the light and look thru it to make sure it is a tight weave..
and use layers of clothing.
Barb ...
re Q: Do you think the flourescent lighting would contribute to the elevated level of 25D?
It's not likely. Some people with Th1 inflammation will notice their eyes and brain react to fluorescent lights, resulting in dizziness and disorientation, for instance. But you are talking about a chemical effect.
Skin cells called keratinocytes react to all light by producing 1,25-D from 7-dehydrocholesterol. The keratinocytes of people with Th1 inflammation will predominately produce more 1,25-D than a normal person, leaving little 25-D remaining from light exposure. That is why in folks with Th1 inflammation, 1,25-D is elevated and 25-D is low unless there is an ingested source like vitamins or supplemented food providing the 25-D.
Belinda
If your Dr agrees: to minimise symptoms at any time, or if going out - as well as protecting from light, you can take an extra half tablet (20mg) Benicar any time during the cycle, or adjust the dosage to 40mg Q4H. see also in BenicarQuiklink many Members report chewing or sublingual gives faster absorption/relief..
for those sensitive to lighting in the stores etc:
also: Note that "indoors" / gyms/ shopping malls/ airports etc may also have Natural light exposure because of skylights and or large windows or doors. which may inrease symptoms.
Natural light > protect skin and eyes..
Artificial light > protect eyes / not skin..
Some stores have mercury vapor lighting, which can be very intense in the UV spectrum.
What precautions do I need to take when I am going out or when traveling away?
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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ElizaH
Member
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Posted: Sat Apr 22nd, 2006 04:50 |
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I have a cousin in NZ allergic to UV light. He put me onto a lycra like SF50+ fabric I believe is made in Amerivca. I found an outlet here in Canberra and purchased 5 mretres. From it have made a long sleeved shirt, a long sleeved long dress, a hood and removable face mask and there is enough left over for a couple og pairs of gauntlets when I get round to making them and a bit more beside.
It certainly stops the burning feeling of sun on skin, even if it is covered with other clothing, when driving in the car. I wear the dress and head and face covering to medical appointments and do not think I experience any sun flare following. If I do it is very mild.
The head gear look like a cross between Lawrence of Arabia and Darth Vader. No one seems the slightest bit interested in my odd appearance, not even the anti-terrorist people.
All the best
ElizaH
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Fatigue/nausea/skin late98 Uveitis+Glaucoma, dx Sarc dx 3/99, breathing probs 5/05: NOIRS 3/05: oxygen 24/7 5/06: 15Mar05 1,25D=80.76, 25D=13.2: Votum 40mg q6h 24/11/05 Phase1 12/05-4/06 Modif Ph 2 13/4/06
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Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
| Posts: | 3373 |
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Posted: Sun Apr 23rd, 2006 16:33 |
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As for fluorescents, when I first began the MP, I used to wear dark sunglasses for protection in offices and while shopping rather than NoIRs. As long as I blocked out much of the light I was fine, but if I took them off to compare colors or to try on clothes while shopping, I would get dizzy.
Now, and for the last several months I don't wear any glasses in the stores at all. I usually mainly go out in the evenings, but I posted recently about an experience I had where there were large skylights in one store's ceiling and I didn't have my glasses on in there and suffered no ill effects.
Although there was natural light coming in, it was reflective light and not direct sunlight. It seems I can tolerate a little more reflective light now, too, albeit very cautiously and for short durations.
I did/do keep my skin covered and I wear Bolle 100s (equivalent to NoIR 10%) when I venture outdoors during the daylight.
So, all in all, my light sensitivity is definitely improving and more dramatically to the artificial light than natural light, IMO.
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prugg21
Health Professional
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Posted: Mon Aug 21st, 2006 20:59 |
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It's good to know from everyone that this fluorescent lighting sensitivity will get better in time. I've also noticed that the major places I need to go such as the grocery and drug store are worse lighting wise for me than outside.
I was dressed in dark denim jeans, leather tennis shoes, socks, a long sleeve tightly woven shirt with a dark heavy denim jacket, canvas wide brimmed hat, outdoor Noirs and k-cream on my hands and face and still got very faint, almost passed out and had to leave to go sit out in my car in the bright sunlight where I was better, after spending more than a few min. in a brightly fluorescent lit store. This has happened twice now.
The really odd thing I now recollect, is that in the past, before doing the MP, I would go into that store and feel better from chemical exposures or feeling bad while in town. It had a palliative effect on me. Now, I guess I know why! Good thing I have someone to grocery shop for me, as I don't know how I'd manage for a family by myself right now.
Pam
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MCS/CFS/FM,22+yrs,Gerd,migraines,insomnia,avoiding light & D,NoIRS,benicar 3/30/06 40mg Q4-6H,mino,4/18/06,mod/ph2-
10/17/06,probx,estriol, 3/06-25D=27,9/06-25D=26,11/06-25D=21,4/07-25D=22,7/07-25D=19
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