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Dr Trevor Marshall
Research Team
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Posted: Mon Oct 31st, 2005 20:27 |
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Multiple Chemical Sensitivity
Multiple Chemical Sensitivity (MCS) syndrome is explained in this article and this article from American Family Physician.
Many MPers, which a wide variety of Th1 diagnoses, are reporting improvement in their MCS symptoms.
See Will the MP treat MCS?
See also Multiple Chemical Sensitivities in the General Forum
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LH1953
Member in Phase 3
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Posted: Mon Oct 31st, 2005 21:57 |
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Electronic personal air purifiers
Electronic personal air purifiers are wonderful little things, whether worn around the neck, in cars, or the 'Ionic Breeze' desktop models. They are 100% compatible with the MP, and I used to have them everywhere around my house. The strange thing is, I never found the ozone they put out as being annoying at all, despite what you read about ozone and asthma
Members' experiences
-I am HIGHLY allergic to any other air purfier except this one. They do not make it for a large room, which is why I wear it all the time. It works on a "corona" discharge which makes this product different from ALL the rest. It is made by Wein Products. Anyone interested , let me know and I will be more than happy to tell you about it. If you live in the US, I'll call you if you leave me your phone number through private message. There are different styles. If you have Asthma, espically Chemical Sensitivity, this is very helpful. I buy it through a distributor at 1-866-999-8422.
I have been wearing a personal air purfier around my neck for the past 4 years. After taking so ill at work due to extreme mold issues, I developed Asthma, not knowing that I had Lyme at that time. I was the only one in that building that became so ill. It took another year to get the diagnosis of Lyme. Since I started the MP, I have told you that my MCS and Asthma has shown improvement. I am able to go without air purfier for about an hour at times before breathing gets tough. I NEVER go to the DOCS or pharmacy without it. Hope this is OK. ~Lori
May24, 08-After 1 1/2 years on the MP, I NO LONGER have the need to wear my personal air purfier!!!! Thanks MP. ~Lori/LH1953
-A Hepa filter will not help with MCS symptoms. An electrostatic filter (eg Ionic Breeze) often helps, but Hepa doesn't filter small enough particles to be of much help.
The Ionic Breeze doesn't have a fan. There are units with electrostatic filter cells available from Sears, inter alia, that have fans and therefore cover larger areas. But Ionic Breeze works well enough if you are within a few feet of it. Take a look at
http://en.wikipedia.org/wiki/Electrostatic_precipitator
..Trevor..
-Some Allerair air cleaners have very sizeable activated carbon filters (as well as HEPA) but they are expensive, big, and slow to acquire. ~tgritton
Hypoallergenic oxygen tubing
Tygon tubing for oxygen masks To outgas this tubing, bring distilled water and baking soda to a boil. Remove from heat and insert tubing. Let stand for an hour. Air dry. Repeat if necessary.
Last edited on Tue Jun 17th, 2008 23:52 by
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Lyme, MCS, IC, asthma, reflux, UC, osteopenia, hypothy, EBV, 1,25D48, MP 8/05, alupent inhaler, PBX, diazepam, fioricet, Ph3 7/06, NoIRs, limited outings covered up, low lux home, 25D4, 1,25D24
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Posted: Mon Jul 16th, 2007 00:26 |
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Metabolic changes in the brain
Dr Brian Fallon's group found from SPECT data that the main metabolic changes in the brain were in the region of the Parahippocampal Gyrus. This is responsible for receiving sensory input from the outside world, integrating it, and projecting it onto the hippocampus (memory) and amygdala (fear, aggression, mood).The insula was also affected.
Further, the Para-Lymbic dysfunction noted on SPECT
1. disrupts attention, memory and learning
2. alters emotional response to sensory stimuli
3. distorts links between visceral states and mood, and may lead to increased stress responses
4. depresses the immune response and alters endocrine function
5. alters perception and emotional valence of pain, smell and taste
Consequently, symptoms approximating "multiple chemical sensitivity" and "allergy," but not strictly either of these, mix in with feelings of spiders creeping up our skin, and a plethora of other stimuli-misidentifications by the brain that are common in ALL these chronic Th1 diseases.
Not only do all these symptoms vanish as you recover, but also you will find pollen allergies, etc, vanish. Hmmm..."
..Trevor..
Forget about the MCS myth of an impaired cytokine P450 pathway (causing poor toxin and drug clearance). MCS is just a subset of Th1 disease symptoms. The enzymes of the Vitamin D pathway are all P450 enzymes (see my slides on the "Science" DVD). So there will be P450 pathway changes in Th1 disease. But these changes will be keyed to the disease state, not to the disease name. GI tract health will vary between MCS patients the same as between any other Th1 patients.
..Trevor..
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Posted: Fri Sep 28th, 2007 09:09 |
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Product labeling
The FDA website says the FDA not defined the meaning of terms such as "fragrance free." They tried to establish definitions, but they were overturned in court. When you read the product label, keep in mind that there is no regulatory body validating claims like "unscented" and "fragrance free."
Unscented means: they may still add a 'masking fragrance' to supposedly block the 'raw materials' smell. See FDA labeling regulations for more information.
Fragrance free implies that they add NO fragrance at all and the only smell you would (supposedly) get from this would be the materials used to make this item.
Let the buyer beware.
Last edited on Mon Oct 1st, 2007 11:08 by
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Posted: Mon Oct 1st, 2007 11:03 |
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Members' reports of improvement in MCS symptoms
-It is now 9:45, and I have been home for 1 1/2 hours, still not in need to shower the fragrance off of me. I spent 2 hours at the Mall, after 3 months of being home. Before I started the MP, I would get so sick from a trip to the Mall. My throat and ears would swell, and my lungs hurt terribly. If I did not immediately shower, I would become worse. I can smell the fragrance, but, my body is not reacting. Thank You MP!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! ~Lori
-My chemical sensitivities are essentially gone!!! I can now use bleach if necessary, and perfumes no longer bother me. ~Katydid
-One of the symptoms of my MCS has been that I smell things more acutely than other people. Things that really are there, but just in very low concentrations. And, if I've been overexposed to chemicals, the sense of smell can really go haywire and then I end up getting smells really mixed up, like the smell of tuna or rice crackers smells like something burning (when family members have opened these I have been known to look around frantically for a fire) and the smell of fruit smells like a really heavy perfume. And the smell of heavy perfume, well that just feels like I'm drowning with no oxygen to breathe, seriously.
Good things I've noticed are that I tried reading a newspaper this week and didn't react to the ink (used to give me a headache if not a migraine). I also had 2 other 2nd hand exposures (meaning another family member had an exposure) which normally would've given me big problems and while I could notice it, they were not big deals. ~prugg21
-She purchased the newspaper while we were out and I picked it up and was reading it. She was shocked and asked if not the ink and smell from the paper bothered me anymore. It didn't at that time anyway. Wow. Is the end of MCS symptoms/allergies in the horizon for me? I believe so ...thank God. I'm truly liking the small pieces of the puzzle too!!! ~Toni
-I also have had such a drastic reduction in smell sensitivites, it is unreal. I can handle almost any scent I come in contact with and some of them actually smell 'normal' and good. WHAT A BLESSING. ~Barney
-After taking an abx holiday for a couple of months, and I have changed my antibiotic combination, my MCS,and insomnia are the best yet with no fatigue or any other symptoms. My innate immune system seems to be functioning at a very high level.
I'm working in an office enviroment with lots of cologne and perfume around,W/O HARDLY ANY SYMPTOMS WHATSOVER!!! ~Sam
Food sensitivities
-my food sensitivities have gradually improved to the point where I seem able to eat anything !!! Jenny in phase 2
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Posted: Mon Feb 25th, 2008 09:20 |
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[filelink]
Hints for MCS sufferers who may be hospitalized
Talk to your doctor about a private room being medically necessary. Not only to prevent catching an infection from others, but so you can breath easier.
-This is something I have always done. I have also refused to have anyone who comes into the room that I become reactive to, to please leave. They think I am nuts, but I tell them to check with my primary care doc who knows the extent of my MCS. Especially now, they keep the gel had sanitizers everywhere. I am extremely reactive to this. It took a while for me to realize that this was a big trigger for me, my hospital stay last Nov. Also to not let the cleaning people use any chemicals in room, just sweep, change trash, but no cleaning products. At first when I used to request these things, I was looked at strange, but now, I demand this to be done, and don't care who thinks I am crazy, cause I am the one who suffers. ~LH1953
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kbanshee
Member in Phase 2
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Posted: Thu Jul 2nd, 2009 07:43 |
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I have severe allergic asthma that comes on in response to exposure to many fragranced products & cleaning products, etc. Completely closes my bronchial tubes, etc.
I also have spent a LOT of time in the hospital dealing with various surgeries, etc. In the countless fights over the use of fragranced and cleaning products in my room (on top of the fight over my food allergies & depending on the year mostly vegan or entirely vegan diet...but I digress).
I have made a poster you can print out and hang on your door if you do have to spend time in the hospital. One is for allergic asthma, one is for MCS...you can download them as pdf or jpg
http://killerbanshee.com/design/fragrance.html
I also have 'i can breathe' masks for those unavoidable moments. Not complete solution, but minimizes:
http://www.icanbreathe.com/
I hope that as I go thru the MP I won't need these things as much, but wanted to share.
Cheers,
Kriss
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Mult neuro gastro endo pulm genetic skeletal + diag see http://killerbanshee.com/mp/ |1,25D37 25D2<4 25D3-21|Ph1Jul09|25D?(Jun09)|Kadian Nexium Cytomel Synthroid Humatrope Cymbalta Reglan Miralax Maxair Probiotics Fiber|NoIRs low exp cover up low lux
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