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Dr Trevor Marshall
Research Team
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Posted: Sun May 22nd, 2005 01:06 |
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Dr Robert P. Baughman discloses:
Relationships with a Commercial Interest
Centocor : Research Grants
Celgene: Research Grants
Glaxo Smith Kline: Research Grants
Wyeth: Research Grants
Amgen: Research Grants
Off-Label Uses:
Prednisone: Treatment of Sarcoidosis
Methotrexate: Treatment of Sarcoidosis
Azathioprine: Treatment of Sarcoidosis
Thalidomide: Treatment of Sarcoidosis
Infliximab: Treatment of Sarcoidosis
I am sorry, I couldn't help laughing uncontrollably that somebody is at last admitting that these drugs were never approved for treatment of Sarcoidosis and are all being used off-label...
..Trevor..
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Frans
Member in Phase 2
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Posted: Sun May 22nd, 2005 10:51 |
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Trevor,
Do you think this will mean that his work will be under greater scrutiny in the future? That his 'peers' will be more critical in judging his work/accomplishments? Or is it just too much Old Boys-networking?
I have read some more articles yesterday about calcitriol etc. and am flabbergasted about the things these people don't take into account to arrive at the conclusion that calcidiol and calcitriol could be very useful in a lot of diseases. Brrr, consensus blows me away, scares me to death actually.
You still have a long road ahead of you, I gather.
Enjoy!
Sincerely, Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Frans
Member in Phase 2
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Posted: Sun May 22nd, 2005 11:31 |
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To elaborate a little:
These scientists inject 1,25D into tissue that carries disease. Eg cancer. Ten they say: hey, that helps!
Yes, I know that helps. 1,25D is THE immunemediator.
They then draw the conclusion: inject people with 1,25D and all will heal.
Wrong.
What they have shown is that a normal working immunesystem, that creates its own needed 1,25D will take care of these diseases.
The real question/conclusion they should ask is: why doesn't this person's immunesystem take care of these diseases.
I thought science was about formulating the right questions, but these researche(r)s don't do that, they are all following the path of others, effectively questioning and creating NOTHING.
My hat is of for you dr Trevor Marshall !!
Sincerely, Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Meg Mangin R.N.
Research Team (on leave)
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Posted: Sun May 22nd, 2005 19:53 |
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Frans asks, Do you think this will mean that his work will be under greater scrutiny in the future? That his 'peers' will be more critical in judging his work/accomplishments? Or is it just too much Old Boys-networking?
Frans,
All of Dr. Baughman's peers are following the same ineffective 'standard of care' and will not scrutinize this sarcoidosis expert closely. They are following his lead based only on the large volume of sarcoidosis patients he treats, not on the number of sarcoidosis patients he's cured which is exactly no one.
Many of the sarcoidosis patients on the MP have had the experience of hearing the disdainful remark that the Marshall Protocol is not approved to treat sarcoidosis. This statement is supposed to carry weight despite the fact that NONE of the toxic, ineffective medications currently used are approved for treatment of sarcoidosis. This double standard is used as justification to deny patients a new treatment that has proven efffective for hundreds.
The first section of Trevor's post where he lists the five pharmaceutical companies from which Dr. Baughman receives money, should provide a clue as to why these sarcoidosis 'experts' are reluctant to study a treatment plan that will not increase their income. The medication being studied and promoted by Centacor costs $4600.00 PER MONTH for ONE IV treatment, with treatment expected to continue ongoing for a 'lifetime'. Dr. Baughman has seen, firsthand, two (that we know of) sarcoidosis patients improving on the MP. Yet he steadfastly has refused to order the MP meds or discuss the science with Dr. Marshall.
IMO, the power of a handful of closed-minded, self-interested specialists to influence the fate of people who are slowly dying is being sadly abused. We can reach a limited number of people via the Internet but we are working at the political level with government agencies to effect a change so that the average clinician will no longer be misled by the information coming from the 'establishment'.
Best,
Meg
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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Dr Trevor Marshall
Research Team
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Posted: Sun May 22nd, 2005 20:38 |
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Meg,
Let me enlarge on your Mathematics a little. A large number of patients cannot handle side effects of Remicade infusions, or they catch cancer, and have to be taken off it. Bob's colleague said (in answer to a question) that Bob had about 20 patients on IV Remicade who tolerated it well, and that 20 had been on it for more than 2 years.
Each month about $1000 of the $4600 goes to pay the prescribing physician's clinical group, who provide the IV infusion, and any emergency care needed (for the (apparently) all-too-frequent anaphylaxis).
So that means Remicade is regularly worth $20,000 per month to Bob, or maybe to Bob and his clinical team. Still a lot of money, however you carve it up. And then there are the $1000 for each of the majority of patients, who suffer intolerable side effects from their first two or three infusions and don't continue. I wouldn't mind having that sort of money on-tap...
..Trevor..
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scooker48
Member in Phase 3
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Posted: Sun May 22nd, 2005 21:50 |
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What exactly is Robert P. Baughman's position with respect to research on sarcoidosis? Is he in a position of power?
Thanks,
Sherry
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Necrotizing granulomas biopsy 10/88; Dx 12/04 Sarcoid liver spleen. 2/2/05: VitD 25/VitD125 62. 04/07/08 D25 <7.0 L, Liver function normal 4/08; Wear NoIRs outside & for computer screen time. No K creme used.
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Dr Trevor Marshall
Research Team
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Posted: Sun May 22nd, 2005 22:52 |
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Dr Baughman's name was given by Dr Kiley, head of the Division of Lung Diseases of the NIH NHLBI, as the most authoritative of the 'experts' on Sarcoidosis, and NIH NHLBI relies upon his advice, even on issues of community education, such as what NIH NHLBI puts into their booklet "Facts About Sarcoidosis" (describing the disease, and its treatment).
..Trevor..
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Frans
Member in Phase 2
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Posted: Tue May 24th, 2005 15:02 |
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Incredible, isn't it?
'Funny' that these people still take themselves serious.
I remember someone saying (on the DVDS?) that research means exactly that: RE search, search again.
Too bad they take that too literally and indeed search again for the same answer instead of ANOTHER answer.
The known answer is that the medicins used by this mr Baughman do NOT work. But too bad re-search in his opinion means that he should search again if this is true... and again.. and again.. all the while compromising people's health's.
But hey, the data the MP is gathering cannot be discarded forever. The physicians working with MP will only infect (pun intended) more physicians, not needing the help of these so-called experts.
They can fight the MP till they drop, but they just cannot magically make the results of the MP go away.
My money is on the MP 
Getting politics aboard can and probably will speed things up, but however slow, the MP will prevail because it works, PERIOD.
With you all the way,
Sincerely, Frans
____________________
Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Frans
Member in Phase 2
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Posted: Thu May 26th, 2005 22:10 |
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Trevor,
Was there any interesting info to be found at this conference (ATS)?
I remember you posting somewhere today or yesterday that you talked about abx-resistance in a presentation. Would you like to tell us something about that?
I have been thinking about this a lot and I am thinking about that the mino and other abx you use in MP do not really kill the CWD, but just weaken them by slowing their protein-'metabolism' down. It seems to me that they would have to be very, very smart to figure that out and mutate.
Was your presentation at this thread's conference? I may be mistaken, but thought it was at this thread's conference, but now I think of it, it might have been the ILADS one. If so, we will wait for the info to come out via DVDs or otherwise.
Sincerely, Frans
PS just thought about the relevance of the first post, the off label use etc and did not mean that that was not interesting, because it might give you a bat to swing with at people attacking you for off label use of meds
Last edited on Thu May 26th, 2005 22:15 by Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Dr Trevor Marshall
Research Team
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Posted: Thu May 26th, 2005 22:28 |
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Frans,
The latest talk was at the 30th Anniversary of Lyme. I will send you a DVD with the talk on it. An advance Christmas present 
The 30th Lyme conference committee is working on their own DVD, the version I will send you is a "Kaz Special Production" (just like the DVDs from Chicago).
..Trevor..
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Frans
Member in Phase 2
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Posted: Thu May 26th, 2005 22:56 |
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Wow Trevor,
Thank you so much! This blows me away!
A Kaz special? That should suffice, to say the least 
Christmas huh? We had a bout of freezing temperatures just a week ago, looks like christmas will be late this year  Hopefully the DVD will arrive before then
PS The prof. I mentioned that will guide Ellen through MP gives a presentation coming tuesday and Ellen and I will attend and hand him the DVD-set for physicians as well as the info-papers included. Nice to talk with him face to face, I will let you know if there is anything interesting to be conveyed. I have a list of questions pepared
Thank you Trevor!
Sincerely, Frans
Last edited on Thu May 26th, 2005 22:57 by Frans
____________________
Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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jrfoutin
Research Team
| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
| Posts: | 3877 |
| Status: |
Offline
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Posted: Sat Aug 20th, 2005 20:49 |
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This series of posts are seriously worthy of reveiw.
I'm learning, Trevor. Thank you, again and again, for the truth -- and an honest plan for wellness.
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2
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