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Ike
inactive member
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Posted: Sat Oct 30th, 2004 22:32 |
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| Perhaps someone has a thought on this. Is it wise for us to donate blood? I just read an article that says many of us have too much iron and donating is a good thing. I have been donating occasionally. Might whatever is causing our inflammation be present in our blood? Thanks -- Ike
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1,25 D 42 25 D 18 ArmourThyroid150 mg,Selegilene5mg,Neurontin600mg3x,L-Serine,PercocetAmbienPRN,vitE&C&minerals,CoQ10,NeuroPS,Benicar 4x40,Quercetin, Mino 11-15-04 25mg.
FMS,MCS,CFS, Pelvic pain
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Admin
Administrator
| Joined: | Sat Jul 10th, 2004 |
| Location: | USA |
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Posted: Sat Oct 30th, 2004 23:34 |
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People who are ill should not donate blood. I wonder how many people I might have infected with Lyme disease during the nearly three decades I was sick before knowing that I had an infectious disease.
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Betty G.
Member
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Posted: Sun Oct 31st, 2004 15:55 |
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Hi Ike!
I too donated blood for 20+ years frequently ... also before I knew I had lyme dx this July 04!
As Suzanne, do NOT donate blood. After I was dx, I called our local blood lab to tell them of my lyme dx, and that I was a past donor; they did not seem to care.
Our hospital CEO told me, they follow CDC'S rules given to Defense Dept. If a lyme patient has been CURED FOR ONE YEAR, they will allow you to be a blood donor. This info is also in the new Aug. 04 paperback book just published.
Also, I recently found out form Iowa's donor/organ assn. that those of us with lyme disease should NOT donate our bodies/organs/tissues! They can accept our CORNEAS only! Nothing else!
So I contacted them back tearing up my donor approval app that I was very specific on what they could/not use.
I'll just have to remember this the next time I renew my driver's license to show NO...body donor!
Edited: We are NOT to be bone marrow donors either! Betty G., Iowa
Last edited on Sun Oct 31st, 2004 15:57 by Betty G.
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res MP; dx 7-12-04 lyme(34yrs); 1-2-04 diabetes2, FMS-CFS34 yrs; IBS; OA; osteop, gerd; 12/04 sleep apnea/restless leg; D,25=21; 1-05 D,125=20. CRP 3.1 Meds: diflucan,biaxin & doxy + benecar 40 mg/day, synthroid, zoloft, baclofen, NOIR ambers 2-10%outside
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hrts4me
inactive member
| Joined: | Sun Oct 17th, 2004 |
| Location: | Texas USA |
| Posts: | 590 |
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Posted: Sun Oct 31st, 2004 16:09 |
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Hi Ike,
A resounding NO from here, too. We are fighting these diseases and disorders with antibiotics, meaning there are pathogen(s) involved.
hrts
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LYME COPD Arterioscl Seiz FM CFS Hypertens NASH HiChol/ 4.2cmKidneyMass&Stones HyperCaPhUria Angina Arryth SOB RadNeurop BiPolarI| 1/05 25D-14 1,25D-13 2/07 25-D14| Nitro Verapamil Hydrocodone Baclofen Dicyclomine promethazine clonazepam
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Meg Mangin R.N.
Research Team (on leave)
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Posted: Tue Nov 2nd, 2004 16:25 |
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Ike,
Organs and tissue (Kveim test) from sarcoidosis patients have caused sarcoidosis in the transplanted recipients. This is proof that the bacterial pathogens can be transferred and trigger the same abnormal immune system response in susceptible people.
Theoretically, the bacteria can also be transferred via blood. Blood banks may not have strict regulations against donations from people with so-called autoimmune diseases or Th1 inflammation but now that we know the bacterial etiology, we advise people not to donate.
Best,
Meg
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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hodologica
Member
| Joined: | Wed Sep 8th, 2004 |
| Location: | USA |
| Posts: | 86 |
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Posted: Tue Nov 2nd, 2004 21:59 |
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| I donated lots of blood when i was well. Given what i know, i would never consider doing it again even if i get well and stay well for 50 years. Taking the example of Lyme, its not at all clear that Bb is ever totally eliminated from anyone, whether asymptomatic for one year or ten. Even if it is eliminated, a chronic lymie's body is obviously a hospitable place for Bb and they could always have a new developing or latent re-infection. The medical authorities may think a Lymie's blood is safe after one asymptomatic year, but again then the medical authorities in Britain are spending VAST heaps of money to set up inpatient centers to treat CFS thru cognitive-behavioral therapy, which just goes to show that you gotta think for yourself when it comes to Th1 disease.
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Male, 23, ill 1 yr plus, slow-onset CFIDS, lyme-equivocal. Not on MP; on conventional LLMD tx. Pelvic pain
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Betty G.
Member
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Posted: Wed Nov 3rd, 2004 18:00 |
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Suzanne, may I suggest that you edit the topic line to "donating blood, organ, tissues, or bone marrow" to better reflect the content of this post. Thanks. Betty G., Iowa
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res MP; dx 7-12-04 lyme(34yrs); 1-2-04 diabetes2, FMS-CFS34 yrs; IBS; OA; osteop, gerd; 12/04 sleep apnea/restless leg; D,25=21; 1-05 D,125=20. CRP 3.1 Meds: diflucan,biaxin & doxy + benecar 40 mg/day, synthroid, zoloft, baclofen, NOIR ambers 2-10%outside
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
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Posted: Sun Nov 14th, 2004 23:31 |
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| from Trevor Marshall: Sarcoidosis patients are not allowed to give blood by the USA Red Cross. They are allowed to give organ transplants, and Dr Moller noted that during transplants involving patients with sarcoidosis, patients who receive a donor organ from a sarcoidosis patients develop the disease, and clean organs transplanted into sarc patients become infected.(see full text of this paper: http://tinyurl.com/6xx46 )
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Belinda
Research Team
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Posted: Mon Nov 15th, 2004 02:43 |
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Here is a report indicating sarcoidosis occurs following stem cell transplants:
http://tinyurl.com/6q7vb
Pulmonary sarcoidosis following stem cell transplantation: is it more than a chance occurrence?
Chest. 2004 Aug;126(2):642-4.
PMID: 15302757 [PubMed - indexed for MEDLINE]
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