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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19445 |
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Online
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Posted: Sat May 14th, 2005 07:42 |
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Does sarcoidosis go away without MP treatment?
Dr Marshall says:
The granulomas will not go away "on their own". Sarcoidosis NEVER goes away "on its own". The scuttlebutt you will read about "60% of sarcoidosis patients not needing treatment" has no basis in science.
The biggest study of Sarcoidosis in history is the NIH 6-year ACCESS study. It shows that Sarcoidosis does not go away.
Sarcoidosis never goes away. This is a myth. About 6 months ago we got the NIH NHLBI to take this myth out of their patient information, on the basis that their huge ACCESS study, which cost taxpayers tens of millions of dollars, and tracked hundreds of newly-diagnosed patients from all over the USA, did not find one person whose sarc had gone away by the end of 2 years.
It will take a decade or two for the doctors and specialists to catch up with this information, however, as most of them haven't even read the study results yet. But you can read it on the Internet(wouldn't you think they would be using the Internet too, by now?)
Take a look at
http://autoimmunityresearch.org/sarcoidosis.pdf
and
http://autoimmunityresearch.org/access-2yr.htm
Oh - and that huge study also found that prednisone was useless - that just as many people had improved symptoms without taking prednisone as those who did take it (note that improved symptoms do not mean the disease goes away - just that it relapses and remits a bit until it finally kills)
From time to time, Sarcoidosis patients experience periods where they actually find it a little easier to exist from day to day. Some call this "remission." It usually lasts for less than 3 years, but sometimes can last as long as 5 years.
After "remission" there is the phase of "relapse" as the disease comes back with a vengeance.
Usually "remission" is induced by drugs (eg steroids) or by other changes which stop the body killing the bacteria. One of these is pregnancy, where 1,25-D goes to very high levels as it is manufactured in the placenta. Post-partum the patient will usually relapse, and patients are sometimes clinically diagnosed during this post-partum relapse.
Remission is not "health." The chronic disease has not gone away. "Remission" is a state of being only a little better than "severe illness."
If you listen to the Panel Session on the Chicago DVDs called "What is Cure?" you will hear a number of patients describing what it is like to actually rid yourself of the disease with the Marshall Protocol. This is not "remission," it is "cure."
See also Sarcoidosis Overview
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Meg Mangin R.N.
Research Team (on leave)
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Posted: Fri Nov 24th, 2006 03:27 |
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(filelink)
I'm interested to know why some people seem to fully recover from CFS without any intervention? What happens within their bodies that does not happen within ours?
...these chronic diseases wax and wane over a lifetime, yet many patients are prepared to declare 'recovery' if they feel they can cope reasonably well over a month or two, or even a year or two, regardless of the medications they need to take to induce this 'recovery', and regardless of what their blood markers (Triglycerides, LDL Cholesterol, etc) are saying.
Unfortunately, every one of those 'spontaneous remission' stories I have followed up has turned out to be 'wishful thinking' in the long run... Those stories are not confined to CFS, folk with the other Th1 syndromes also tend to minimize their disabilities until they just become overwhelmed...
The same state of mental denial which helps a patient survive from day to day, also discourages them from seeking help until it is very late indeed...
~Trevor..
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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