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Aussie Barb
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Posted: Fri Aug 12th, 2005 09:26 |
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Aussie Barb's Progress Report Benicar
Aussie Barb Phase 1, Aug 04
From Previous Progress Report Aussie Barb Phase 1, Nov 04, cont'd Page: 1 2 3 4 5 6 ... 14 15 16 17 18 ... 27 < last page
(I began this new Report because the last report was becoming too large)
Barb .. 
Aussie Barb Ds:
July04: cut light & D
Aug04:1,25D=55.83
then start Benicar
Sept04:1,25D=36.66 & 25D=35.2
Dec04:25D=32
May05:25D=28
Sept05 25D=21
Mar06 25D=14
too pufft up to have further blood tests at this time. too difficult to find a vein.
Hospital Oct-Dec07 presumably low 25D.
Nov08 25D=10
Aug09 25D=30.4 avoiding D. not avoiding light since Oct08.
ADD Dec 8th 2005: Aussie Barb Post
ADD Jan 20th 2005: Aussie Barb Parade of Memories
change of combo begins same page
What is my gut herx? 
List of progress so far February 11th 2007
August 27th 2007 process
Management of meds
more
Dream
August 08: How am I really?
Coming out in October 08 to the indoor pool
POOL Journey summary
POOL 1 Year
The Marshall Protocol Blessing
To us Each & All:
May your immune response be big enough
for you to be making good progress
and not too big
that you may still be able to rise to the challenge!!!
Barb 
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx CFS| Cut D/exp July04| NoIR Aug04 Comm Beni|Q| Sept05 25D=21 off Thyroxine| Mar06 25D=14| CLICK on the ABC of MP Link to Alphabetised list of Essential Information.
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| Cut D/exp July04| NoIR Aug04 Comm Beni| Sept05 off Thyroxine| CLICK ABCofMP
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Fri Aug 12th, 2005 13:00 |
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Friday August 12th 10pm. PHASE 2 / level .5 / cycle 2 / Day 3 / mino is 50mg QOD > today / Benicar 20mg Q3H / Quercetin TID
The change to Phase 2 brought me misery of memory herxing in the first week.. and then has lightened off this week.
harder gut herxing this afternoon. uncomfortable but bearable with meds doses bringing relief each time .. the rest of me is having a good break from heavy full body involvement.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sat Aug 13th, 2005 22:42 |
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Sunday August 14th 7.45am. PHASE 2 / level .5 / cycle 2 / Day 5 / mino is 50mg QOD > today / Benicar 20mg Q3H & 40mg 9pm / Quercetin TID
The chest pressure when I first lie down is a continuing symptom that I dont mention every time.. The gut herx is there all the time, kept down quiet by the meds, and begins rising when the meds are due.. tired, and eyes sludgey this morning.. runny nose. nothing much.. one day at a time.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sun Aug 14th, 2005 08:52 |
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Sunday August 14th 6pm. PHASE 2 / level .5 / cycle 2 / Day 5 / mino is 50mg QOD > today / Benicar 20mg Q2H / Quercetin TID
depression. extra Benicar. NPS. rest.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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BARNEY
Moderator
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Posted: Sun Aug 14th, 2005 21:39 |
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HANG IN THERE, AUSSIE BARB, WE WILL MAKE IT!!!! DON'T LET THE DEPRESSION GET YOU DOWN TO FAR, REMEMBER YOU HAVE ALL OF US MPers BEHIND YOU.
YOU ARE ALWAYS THERE FOR US AND WE WILL BE THERE FOR YOU.
BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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Aussie Barb
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Posted: Mon Aug 15th, 2005 07:25 |
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Thank you Barney.. and to All who have sent private messages..
Monday August 15th 4.30pm. PHASE 2 / level .5 / cycle 2 / Day 6 / mino is 50mg QOD > not today / Benicar 20mg Q2H prn / Quercetin TID
As the 2H comes around a headache and sore glands start to rise.
I know that I have a lot of healing to do..
I am ok thank you.. I am finding it too much of a push to talk to anyone today, so have had the day off. That is about as well as I can describe it.. and I will be back on deck as soon as I can be..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Aug 15th, 2005 15:58 |
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| I realised that this felt like a panic attack.. so I took mino 25mg at 40H, with relief. headache continues, taking meds to relieve.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Aug 15th, 2005 21:44 |
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Tuesday August 16th 6.45am. PHASE 2 / level .5 / cycle 2 / Day 7 / mino 25mg again @ 12H this am / Benicar 20mg Q2H prn 40mg Q4H thru night.. / Quercetin TID
wakeful till 2am. had cuppa and headache med.. took Benicar 40mg Q4H thru night. slept well 3H. feeling panicky again this morning so mino 25mg @ 12H.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Tue Aug 16th, 2005 12:03 |
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9pm: Benicar 20mg Q3H most of day. 40mg to go to bed.
gut herx some. am still some fragile.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Wed Aug 17th, 2005 02:01 |
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Wednesday August 17th 11 am. PHASE 2 / level .5 / cycle 2 / Day 8 of 10/ mino QOD > not today / Benicar 20mg Q3H & 40mg 9pm night / Quercetin TID
slept well, woke for Benicar. NPS settles reflux too.
gut herx continues. otherwise quietly oker.. able to be on the Board again.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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kathleen
Member in Phase 2/3
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Posted: Wed Aug 17th, 2005 05:39 |
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Dear Barb,
I'm so glad to read that you're feeling a bit better. Still not good I'm sure - it takes alot to keep you down, so you must have been feeling pretty awful. The Z is pretty scary, but then so is the mino. I'll keep looking forward to good days ahead for you - soon I hope. And all of us.
No giving up, Kathleen
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CFS '86, LTD '86 (50 yrs old)pacemaker - total heart block '99 fatigue, cognitive, sleep, digestion, dysautonomia, weakness, headache, tinnitus, IC, new anemia 9/9/04 D,25 44 - D,125 76 4/05 D,25 24 4/05 Ben 40mg/6hrs, Mod Ph 2
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DNStog
Moderator
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Posted: Wed Aug 17th, 2005 05:50 |
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Barb,
@@@@@@@ing over your having a better day.
Donna ~~~~
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Lexapro, eye vits, Milk Thistle, Quercetin, Rx glacier, cover up, 05/09 25D5, 125D11
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shegeek
Member in Phase 3
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Posted: Wed Aug 17th, 2005 07:49 |
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Barb,
You are mega tough. Your herxes seem really tough compared to mine, yet you keep posting. I am scared away by much less.
Take care, shegeek
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FMS,IBS,osteoarthritis,osteopenia, hypertension/ 1,25D/25D=45/44 (10/04), 44/13 (1/05), 36/8 (7/05)
25D<4 (6/06) 25-D=5 (4-08). Avoid light & D w/NoIRs 11/04 Benicar 40mg/q4h(since 1/27/05) Phase 3
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Aussie Barb
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Posted: Wed Aug 17th, 2005 21:03 |
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Thank you Kathleen, Donna, and Shegeek and All for supportive messages... very much appreciated.
Thursday August 18th 6 am. PHASE 2 / level .5 / cycle 2 / Day 9 of 10/ mino QOD > last night 25mg @ 40H / Benicar 20mg Q3H & 40mg 9pm night and 2am / Quercetin TID
gut herxing and some backache yesterday. last night chest pressure, down left arm, and coming up neck, in glands, palate, nose, eyes.. keeping me awake so took mino 25mg @ 40H with relief and slept well then..
nose running this morning and some 'R' side back ache.. and nose ache..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Thu Aug 18th, 2005 21:34 |
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Friday August 19th 6.30 am. PHASE 2 / level .5 / cycle 2 / Day 10 of 10/ mino QOD > due tonight / Benicar 20mg Q3H & 40mg 9pm night / Quercetin TID
very little herx during the day yesterday..
gut herx,
mildly sore throat and glands,
became very tired.. slept well..
woke with a plugged ear... I hope this means that the constantly wet ear is healing..
tasting ability has increased again.
swallowing ability has decreased. have to take tablets more carefully than at any time in my life.
more tendency to be coughy chokey anytime
pulse in left upper lip continues frequently
all is well..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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jolbell69
Health Professional
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Posted: Thu Aug 18th, 2005 23:04 |
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Dear Barb,
Keep going my friend - we are all with you!!
Jo.xxxx
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DX:ChronicBorreliosis&Bartonella,ME/CFS,AutoimmuneThyroid&Hypoadrenia.
TX:Armour90mg,Prozac.Started MP:19may04.
25,D=16.7ng/ml,(Jan05).Benicar,40mg,q6h.Restart 8May09 after 5months break.VitD,25=8ng/ml(May09)
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Aussie Barb
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Posted: Fri Aug 19th, 2005 22:37 |
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Saturday August 20th 7.40 am. PHASE 2 / level .5 / cycle 3 / Day 1 / mino QOD > 25mg / Benicar 20mg Q3H & 40mg Q4 to 6H night / Quercetin TID
Beginning next cycle with mino 25mg: not wanting to redo the intolerable mental herx. and I had to take the 25mg sooner than 48H last cycle to keep all tolerable.
Phase 2 is different for me, in that I am generally better day to day than previously..
I can feel the gut herx rising to uncomfortable as the Mino, the Beni and or the Q are due.
less feeling of IBS now.
tired
some mild back ache
eyes quite sludgey this morning. ear has been inflamed. used ear drops.
I have a transient little pinch feeling around my Heart.
transient pulse in lips.
still cant stand and do anything for more than a couple of minutes.
still cant read a book or magazine.
all is well..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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CJ
Member in Phase 3
| Joined: | Fri Apr 1st, 2005 |
| Location: | Byron, Michigan USA |
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Posted: Fri Aug 19th, 2005 23:00 |
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With you in Phase II. Mental Herxes are the worst MHO UGH.
Glad to see you moving foreward
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Saroidosis/lungs, 25D7 (8/07) Spireva,Ibuprofen, NoIRs, lite exp r/t work
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Aussie Barb
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Posted: Sat Aug 20th, 2005 08:20 |
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Thank you Jo and CJ....
Day 1. Today has been flu like.. actively herxing. head and neck pressure, heavy eyes, sore glands, tired. gut herx.
when I said " I am generally better day to day than previously.. " I must have had memory loss.. from 1 or 2 better days after more freq mino.. at the end of the cycle.. make me smile..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sun Aug 21st, 2005 09:04 |
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Sunday August 21st 6pm PHASE 2 / level .5 / cycle 3 / Day 2 / mino QOD > 25mg / Benicar 20mg Q3H & 40mg Q4 to 6H night / Quercetin TID
I always forget to say that my hips ache very much at night. almost near to cramp and I have to move..
gut and full body herxing day. sore glands in neck, and face ache. all tolerable.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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