| Author | Post |
|---|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Mon Oct 31st, 2005 16:50 |
|
Tuesday November 1st 5.50am cycle 10 of PHASE 2 / level .5 / Day 7 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Slept well.
Head symptoms: head soreness still present. transient pain at the back of skull. The symptoms seem a little less so far today, I guess as it is day 7. It feels today like I have a cap on my head. This has been / is very difficult. very wearing and tiring physically and emotionally. I am astonished at the whole thing. and probably because of where denial has had me.
Any delay in any of the frequent meds schedule increases head symptoms.
face and hands oily
face and scalp itchy
left foot arch ache, eyes blur. coughing when meds are due. tired.
Drawing sensation where seated, continues. pulsing in body.
subcutaneous ouch all over.
transient deep pain in upper arms. hands numb when sleeping.
chlorine BO.
Taking all meds frequently as above and making sure I am fed and rest keeps all bearable to trudging along.
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Mon Oct 31st, 2005 20:03 |
|
Tuesday November 1st Australian Culture:
The first Tuesday in November they run the Melbourne Cup.
Melbourne Cup Day is Australia's most famous Tuesday. It's a day when the nation stops whatever it's doing to listen to the race call, or watch the race on TV, and even those who don't usually bet, try their luck.
At 3.00pm AEST, on the first Tuesday in November, Australians everywhere stop for one of the world's most famous horse races - the Melbourne Cup
see The Melbourne Cup online
World Clock
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Robertrr Member in Phase 3

| Joined: | Thu Jul 14th, 2005 |
| Location: | Austin, Texas USA |
| Posts: | 378 |
| Status: |
Offline
|
|
Posted: Tue Nov 1st, 2005 12:59 |
|
Barb,
I hope the horse you were backing won!
Take care! Robert
____________________ Sarcoidosis 125D44 25D28 Ph1Jul05 Ph2Sep05 Ph3May06 D25-8(Feb07) May08 NoIRs outside otherwise normal light exposure
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Tue Nov 1st, 2005 15:34 |
|
Thanks, Robert.. This is how Google looks today >>
The horse loved by almost the whole Nation, - WON!! for the third year in a row.. a Legend !! MAKYBE DIVA is her name. 
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Tue Nov 1st, 2005 17:01 |
|
Wednesday November 2nd 6am cycle 10 of PHASE 2 / level .5 / Day 8 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Slept well.
Head symptoms: some head soreness still present. transient pain at the back of skull is less as the herx lessens with the days of the cycle. Any delay in any of the frequent meds schedule still causes increased head symptoms.
face and hands oily
face and scalp itchy
left foot arch ache lifting a little with the end of the cycle, eyes very blurry. coughing when meds are due. tired. weak.
Drawing sensation where seated, continues. pulsing in body.
subcutaneous ouch all over.
transient deep pain in upper arms. hands numb when sleeping.
chlorine BO.
still needing all meds frequently as above and making sure I am fed and rest. trudging along.
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Wed Nov 2nd, 2005 18:41 |
|
Thursday November 3rd 7.40am cycle 11 of PHASE 2 / cycle 1 level 1 / Day 1 / mino > 25mg Q12H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Went to Dr yesterday. Covered etc. Stocked up on all scripts.
Slept about 4H and got up.
Head symptoms settled at time of writing.
coughing clearing throat.
face and hands oily
face and scalp itchy
eyes very blurry. tired.
Drawing sensation where seated, continues. pulsing in body.
subcutaneous ouch all over.
transient deep pain in upper arms. hands numb when sleeping.
chlorine BO.
taking care, resting.
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Thu Nov 3rd, 2005 17:09 |
|
Friday November 4th 6.10am cycle 11 of PHASE 2 / cycle 1 level 1 / Day 2 / mino > 50mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Last night uncomfortable in gut even after all meds, so took extra mino 25mg before bed.
Slept well.
Head symptoms settled, but some soreness still present.
coughing clearing throat less.
face and hands oily
face and scalp itchy
eyes very blurry, sticky again, itchy. tired.
Drawing sensation where seated, continues. pulsing in body.
subcutaneous ouch all over.
transient deep pain in upper arms. hands numb when sleeping.
chlorine BO may be less?
taking care, resting.
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
flis Member
| Joined: | Tue Oct 11th, 2005 |
| Location: | |
| Posts: | 12 |
| Status: |
Offline
|
|
Posted: Thu Nov 3rd, 2005 23:16 |
|
Hello Barb, I was just wondering why you take mino everyday? I thought we are meant to skip a day between doses?
Best wishes,
Flis.
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Thu Nov 3rd, 2005 23:19 |
|
Flis
The aim or the key is to achieve and maintain tolerable Herxing (physically, mentally, and emotionally) by adjustment of meds dosing and schedule combined with the Essential aspects of diligently avoiding Light and vitamin D..
I adjust my medications as necessary to achieve tolerable herxing symptom resolution..
Barb ...
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Meg Mangin R.N. Research Team (on leave)

|
Posted: Thu Nov 3rd, 2005 23:31 |
|
Flis,
It sounds like you've been on the MP awhile but are new to MP.com. You might find the following FAQ helpful:
My Herxheimer reaction is too strong. What should I do?
Best,
Meg
P.S. When you have a minute, please add the required signature line. Thank you.
____________________ Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
|
flis Member
| Joined: | Tue Oct 11th, 2005 |
| Location: | |
| Posts: | 12 |
| Status: |
Offline
|
|
Posted: Fri Nov 4th, 2005 01:51 |
|
Aussie Barb wrote:
Flis
The aim or the key is to achieve and maintain tolerable Herxing (physically, mentally, and emotionally) by adjustment of meds dosing and schedule combined with the Essential aspects of diligently avoiding Light and vitamin D..
I adjust my medications as necessary to achieve tolerable herxing..
Barb ...
Oh I see. I read that post by Meg as well and now I understand. I'll also update my signature when I get a chance.
Does that mean if the herx is too strong for me to adopt a qod dosing mino, it is okay to proceed with a different dosing schedule?
Thanks Barb and Meg.
|
Meg Mangin R.N. Research Team (on leave)

|
Posted: Fri Nov 4th, 2005 02:02 |
|
flis,
In order to make any suggestions about your situation, we would need to have the information required in your signature line.
As always, your doctor is your best guide as to how to take your minocycline.
Best,
Meg
____________________ Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Fri Nov 4th, 2005 02:03 |
|
Flis
The FAQ My Herxheimer reaction is too strong. What should I do? has good explanations re the precautions and the options..
You may wish to begin your own Progress Report, so that any specific concerns you have may be addressed there..
thanks, Barb ....
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Fri Nov 4th, 2005 08:06 |
|
Friday November 4th 9.05pm cycle 11 of PHASE 2 / cycle 1 level 1 / Day 2 / mino > 50mg BID today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
If there is a sad herx there must also be a happy herx.. > this morning.. with no company. haha..
Tired by evening as is usual.
Head symptoms: top right quadrant of skull and some at base of skull remains sore particularly when meds are due.
coughing clearing throat at times.
face and hands oily
face and scalp itchy
eyes very blurry, sticky all day, blink blink to see, itchy.
Drawing sensation where seated, continues. pulsing in body.
subcutaneous ouch all over. swollen feet ankles.
hands numb when sleeping.
chlorine BO may be less?
I can feel the full body herx effect when I get up on my feet.
taking care, resting.
I find it difficult to draw the line on how much herx is enough.. but not wanting to push the sore head and etc .. I decide on the dosing moment by moment as I take all my meds and assess if I need something more yet to achieve tolerable.
I write the symptoms so that perhaps others may also be able to recognise them in themselves..
I note here that I have experienced mental and emotional herxing and healing from MP.
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Sat Nov 5th, 2005 00:53 |
|
Saturday November 5th 2pm cycle 11 of PHASE 2 / cycle 1 level 1 / Day 3 / mino > 50mg then 25mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
all seemed quiet this morning
then chest and Heart pressure building so took mino 50mg
herx is harder today, day 3.
was sad, fragile physically, cold in 80+ degrees
then later, gut herx building... took mino 25mg middayish. relief. will need some more in 6H by the feel of it.
tired.
recently have been having bad antbite cramps which hurt deeply. relief by heat or hot shower.face and hands oily
face and scalp itchy
eyes very blurry.
Drawing sensation where seated, continues. pulsing in body.
subcutaneous ouch all over. swollen feet ankles.
hands numb when sleeping.
chlorine BO
I can feel the full body herx effect when I get up on my feet.
taking care, resting.
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Sat Nov 5th, 2005 22:01 |
|
Sunday November 6th 11am cycle 11 of PHASE 2 / cycle 1 level 1 / Day 4 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Herx continues, waking me thru the night, so Mino 25mg Q6H still required along with other meds as above to keep all tolerable.
Gut herx and full body herxing
all other symptoms continue as above..
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Sun Nov 6th, 2005 06:50 |
|
8pm
I feel as if I am finally out from under the Veil of the Thyroxine.
a clear vision of full on herx at the moment.
body, gut, eyes.
all needing to keep the meds going as per above.
sore spots: skull, abdo, left arm bone, under right forearm.
subcutaneous ouch..
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Mon Nov 7th, 2005 16:55 |
|
Tuesday November 8th 6am cycle 11 of PHASE 2 / cycle 1 level 1 / Day 6 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Herx continues, waking me thru the night, so Mino 25mg Q6H still required along with other meds as above to keep all tolerable.
Gut herx and full body herxing. eyes very sticky, blinking to see.
I wake aching all over like I have been beaten up.
all other symptoms continue as above..
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Tue Nov 8th, 2005 17:02 |
|
Wednesday November 9th 6am / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 7 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
The herx has lightened off in some ways but not enough to extend the Q6H mino dosing and the Benicar can be Q2-3H for the most comfort.
Herx continues, waking me thru the night. some urinary burning. Frequent Mino with other meds as above keeps all tolerable.
Gut herx and full body herxing. eyes sticky, blinking to see.
I wake aching all over. am all swollen bloated inflexible. subcutaneous ouch..
tired, resting when I need to.
all other symptoms continue as above..
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb Research Team

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Wed Nov 9th, 2005 18:40 |
|
Thursday November 10th 7.40am / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 8 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
The herx continues, has lightened off in some ways but not enough to extend the Q6H mino dosing and the Benicar can be Q2-3H for the most comfort.
Frequent Mino with other meds as above keeps all tolerable. some urinary burning. some bone pain, some diaphragm flutters again.
full body herxing. eyes sticky, blinking to see.
face itches, and face and hands oily.
tired, resting when I need to.
all other symptoms continue as above..
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
|
|