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Aussie Barb
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Posted: Mon Aug 22nd, 2005 06:44 |
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Monday August 22nd 6.40pm PHASE 2 / level .5 / cycle 3 / Day 3 / mino QOD > 25mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID
Gut/ sore glands/ face ache/ mild Heart pinch/ Herxing continues tolerably as long as I keep all meds continuing... pulsing of lip continues. tired. I think I am fine ok if I stay sitting..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Mon Aug 22nd, 2005 19:19 |
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Tuesday August 23rd 7am PHASE 2 / level .5 / cycle 3 / Day 4 / mino QOD > 25mg / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID
sludgey eyes..
left ear is clogged and some sore.
I can be chilly at some times and hot at others..
some bone pain in arms, transient.
all is well..
I prefer phase 2 to Mod Ph1. It is more controlled although I am herxing strongly and I can feel it more now and yet it is a better general experience than phase 1. .... and I'm not sure yet if that is how to explain the difference.. It may be that I am actually sicker when I am sick (herxing), and 'weller than Mod Phase 1' (all is relative/ not well ) inbetween.. maybe more cyclical, although not actually regular.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Tue Aug 23rd, 2005 18:57 |
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Wednesday August 24th 7am PHASE 2 / level .5 / cycle 3 / Day 5 / mino QOD > 25mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID
this is seeming to be a pattern each cycle.
Day 4 (was yesterday) starts off ok.. and builds mentally as the day goes on..
around 30H begin to need Q4H Benicar
36H wondering what is happening, check that I have taken all meds..
40H recognise that I don't have to feel this bad and that the relief meds are not enough...
got out of bed to take mino 25mg . relief phew!
Mino 25mg again this morning for the QOD dose and also because I needed it. am settling..
cough settling again.
ear is swollen inside. a little sore.
chilly..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Wed Aug 24th, 2005 21:59 |
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Thursday August 25th 10 am PHASE 2 / level .5 / cycle 3 / Day 6 / mino QOD > 25mg not today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID
Day 5 (was yesterday) started off feeling yuck.. and picked up as the day went on..
Chest pressure more pronounced today
gut herxing hard today
cough / settles
ear is swollen inside. a little sore.
transient chilly..
ache/ pain in any finger or toe at any time..
transient bone pain
transient frequent pulsing lip
I am astonished at how little abx I am herxing on.. If I get a period of no herx, I find myself thinking I am a slacker and that I should have taken a higher dose of abx... and then the herx is back, and I am like... oh oh oh.... that sure is enough abx.. no doubts it is enough.. I depend on the Benicar and Q and all to get me thru..
The mental herx can creep up..I use the meds as required to manage all to tolerable..it works to a certain thing... there seems to be a time of not recognising till it is *in your face*.. and debilitating... and when I do recognise that I should or could, it takes an effort to 'make' myself make the move to take the mino. It seems funny to say that I am taking mino 25mg because I am so depressed. and to then get relief.. that usually happens day 4 to 5.. is good to know that it can all be managed.
all is well..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Thu Aug 25th, 2005 04:26 |
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I spoke to a friend (whom I really trust) per phone today.. who knew me 30 years ago and hadnt spoken to me from then till 5 years ago, and then is 12 months since we last spoke..
says I sound like the *old Barb* again now.. (stronger voice)
interesting and encouraging..
..............
& ..... I think I have defined it.. Somehow the going is a bit easier for me in Phase 2..... perhaps because the herx although strong, is more cyclical than Mod Ph 2 or mino.. I'm not in the 'washing machine' fulltime.....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Fri Aug 26th, 2005 00:02 |
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Friday August 26th 12md PHASE 2 / level .5 / cycle 3 / Day 7 / mino QOD > 25mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID
all herxing is similar although periods of some less today.
Further days into phase 2.. and I think it does feel some clearer than before.
some observations about physical effort..
standing requires effort.. without doing anything..
showering is exhausting.. without adding the drying and dressing.
mental effort.. reading a magazine or book is still out of reach.
all is well.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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shegeek
Member in Phase 3
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Posted: Fri Aug 26th, 2005 01:48 |
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Aussie Barb wrote:
The mental herx can creep up.. there seems to be a time of not recognising till it is *in your face*..
Good for you that you do eventually recognize it, and that once you do you feel motivated to deal with it. I am still working on that one--once I'm in the midst of it, I am too caught up in the psychobabble to admit what's going on, even when I do start to realize it. I'm hoping that once I assimilate a little more experience (I'm only in my 2nd cycle), both of my own and that of sage folks such as you, will strengthen my awareness.
Congrats on the compliment from your old friend!
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FMS,IBS,osteoarthritis,osteopenia, hypertension/ 1,25D/25D=45/44 (10/04), 44/13 (1/05), 36/8 (7/05)
25D<4 (6/06) 25-D=5 (4-08). Avoid light & D w/NoIRs 11/04 Benicar 40mg/q4h(since 1/27/05) Phase 3
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Aussie Barb
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Posted: Fri Aug 26th, 2005 18:50 |
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Thank you Shegeek & Tux... and All..
Saturday August 27th 6.50am PHASE 2 / level .5 / cycle 3 / Day 8 / mino QOD > 25mg not today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID
heavy gut herxing, cyclical
pulsing lip
ache / pain big toe
mild coughing, shortness of breath / managable with meds
chest pressure when I lie down.. I have to sit up a bit to ease it and then lie down again..
antbite cramps back- often a sign for me needing to take 2nd abx . will see..
muscles catching some. have to jump around to straighten them..
managing all well. I am enjoying Phase 2.. (note: it is day 8 when I make this statement)
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sat Aug 27th, 2005 05:48 |
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mild gut herx in morning.
sore left breast, continuous.
24H.. antbite cramps have been mild last couple of days.. getting nasty.. - often a sign for me needing to take 2nd abx.
decide to experiment.
Take mino 25mg - cramp relieved. that was a good find.
therefore this will be an 8 day cycle.. plan to take meds tomorrow.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Dogster
Member in Phase 3
| Joined: | Mon Jan 24th, 2005 |
| Location: | Kansas USA |
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Posted: Sat Aug 27th, 2005 17:37 |
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Hi Aussie Barb,
always enjoy your posts and they are helful. Like your phrase "emotional herx" and now the "washing machine" thing. Glad you are progressing . . . I've been sick about as long as you, so watching your posts; MP-wise you are about a year ahead of me.
You don't take any meds, pain pills or anything, other than MP meds? Dont see it in sig line. Have you ever been tested for lyme or mycoplasma or any of the other critters?? Interesting thing about the 25 mino
best, dogster
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CFS lyme RSD: pain migraine| tylenol fioricet flexeril tramadol temazepam| acidoph guaif/cold| Q| Cut D/exp Feb05| NoIR Mar05| June05 Comm Beni Q8H| July05 mino| Jan06 PH2| Aug06 1,25D=29 25D=17|
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Aussie Barb
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Posted: Sat Aug 27th, 2005 17:44 |
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Sunday August 28th 5.40am PHASE 2 / level .5 / cycle 4 / Day 1 / mino QOD > 25mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID
last night, laughing at the television and as usual began coughing terribly and then abdominal and back muscles go into painful spasm.. agony. cough drops and a warm shower helped.
went to bed, couldnt go to sleep.
chest pressure when I lie down, have to sit up a bit to relieve.
Legs aching.
got up and took Phase 2 abx - sleep.
hands numb thru the night.
gut herx humming this morning. a good reminder that this is still an active level of abx. and the big job I am doing.. note to self.. remember this effect when deciding whether increase is nec or not.. by the end of the cycle it is very easy to forget the hit of the herx.
breast continues sore.
.
all is well..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sat Aug 27th, 2005 17:52 |
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Thanks Dogster
I have been lucky to not have any real pain.. I have been tested for lots of things.. the one thing I know for sure is that I am full of inflammation and that nothing else was going to resolve it till MP.. My meds are in my sig line.. the benicar and quercetin, and 1/2 milk thistle tablet taken twice per day, and probiotics twice per day, and my natural progesterone spray all get me from moment to moment each day..
Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sun Aug 28th, 2005 19:00 |
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Monday August 29th 7am PHASE 2 / level .5 / cycle 4 already! / Day 2 / mino QOD > 25mg not today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID
Cyclical hard herxing yesterday.. reminds me of the power of this med.
I can definitely feel very unwell as I go thru this herxing, but it is all tolerable when it is cyclical and for a good cause.
Gut, full body aura feeling is heavy.
emotional.. I can feel the crankiness, or the depression and know it is herx so not to act on it.. just to take meds for some relief..
needed Benicar Q4H some to get me thru....
.
all is well..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Mon Aug 29th, 2005 20:02 |
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Tuesday August 30th 7am PHASE 2 / level .5 / cycle 4 already! / Day 3 / mino QOD > 25mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID
Full body herx is sneaky. it can feel like nothing when sitting, and then to get up and walk I can really feel it.. like a heavy aura.
When I have respite from the herx I begin to think I should have taken more abx, and then the herx is back and I know that is enough.
When I notice my thinking starting to become negative against myself, it is time to take one of the meds for relief of the herx. Beni, Q or if it gets too bad, the mino..
Managing all well.
.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Dogster
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Posted: Tue Aug 30th, 2005 01:26 |
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Hi there Aussie Barb,
from reading this last post of yours I think I see that I am not moderating the herxes quite as well as I should ( or have been, to this point). Am still on a steep learning curve. All in the middle of brain fog, LOL!
I get the agonizing coughing fits and spasms too. Has been some better; is at its worst in winter, so will see when that gets here. . . . .
Like your "full body heavy aura" concept. Dog
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CFS lyme RSD: pain migraine| tylenol fioricet flexeril tramadol temazepam| acidoph guaif/cold| Q| Cut D/exp Feb05| NoIR Mar05| June05 Comm Beni Q8H| July05 mino| Jan06 PH2| Aug06 1,25D=29 25D=17|
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Aussie Barb
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Posted: Tue Aug 30th, 2005 01:56 |
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I will reply to a PM here..
Q: "Do you have the brain fog and memory problems and all that. Mainly in the posts you mention physical symptoms, and mood--I dont see about brain ...."
My Reply:
My brain symptoms show in this way.
I cannot read a book or magazine or
cope with too much input at once,
as in too many people in one room.. or
to talk for too long on the phone, and
I am only able to talk to some people
I won't open the door to everyone that knocks.. moved to new area so is very rare to have a knock on the door..
I wont always answer the phone.
There are some Family matters, or
dealings with Businesses that I cannot handle dealing with at this point, so I stay away from that...
I can't write/send Personal letters or cards or emails like I used to..
These are all things I used to be very good at..
I have had to set some boundaries about how much of MySelf I can expend..
Thank you for asking.. Barb ...
edit to add further Q: has it improved?
Reply: It is difficult to tell under the herx.. I am told that I sound stronger on the phone. All of the above is written in the present tense..
I am stronger in that I am thoroughly content and at peace..
4 years ago I moved away from where I was born and lived all my life to take care of me in these ways.. to set these Boundaries because I could not keep it up..
I will definitely let you know about my improvements in ability.. Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Tue Aug 30th, 2005 19:08 |
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Wednesday August 31st 7am PHASE 2 / level .5 / cycle 4 / Day 4 / mino QOD > to 50mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID
Yesterday I was very tired. and wondering: there have been a few nagging signs re should I be increasing the mino yet.. the antbite cramps, tiredness, and the lessening herx.... but thinking that I would wait to see what days 4 and 5 would bring as they can be my worst..
This morning, bang, the antbite cramp hit hard on my left side ribs and arm, so painful... so I went and took mino 50mg.... relief.. so I have increased my mino.. if it is too much, mino 25mg will fix me up. I really do enjoy the everchanging of this phase.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Arlene
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Posted: Tue Aug 30th, 2005 23:02 |
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Dear Barb,
It is good to read that people who know you can see that you are better. I hope you will feel "well" soon, even though the MP is a long road to recovery.
You are so good at knowing what to change and just how much. I have printed out suggestions you have made and keep them in my MP notebook.
Your last post is another I will print and keep, hoping that I can use them as effectively.
Sincere thanks for all you posts  , Arlene
Last edited on Tue Aug 30th, 2005 23:04 by Arlene
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CFS'93,Lyme/Borreliosis'02,hypothyroid,restless leg, sleep distb, Synthriod,Mirapex,Ambien,DHEA. 12/2/04-Benicar q6h, Mino start 12-31-04, Quercitin Q8H, 1,25D/D 11/04-68/18, 1/05-40/28, 9/05-14/9 PhaseII 4-19-05
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Aussie Barb
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Posted: Thu Sep 1st, 2005 05:20 |
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Thank you Arlene...
Thursday September 1st 5.20pm PHASE 2 / level .5 / cycle 4 / Day 5 / mino QOD > to 50mg yesterday / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID
Today I dont have any gut herx
the big symptom is Fatigue.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Fri Sep 2nd, 2005 04:29 |
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Friday September 2nd 4.30pm PHASE 2 / level .5 / cycle 4 / Day 6 / mino QOD > 50mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID
Our daughter is ill. coming to stay with us..
as has happened to me before, I have virtually stopped herxing..
no coughing. very little gut herx. just very tired. heavy gravity.
I am consciously mentally emotionally fine Ok. My body reacts to the stress more than I realise..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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