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BARNEY
Moderator
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Posted: Mon Feb 28th, 2005 07:07 |
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REENIE,
SURE, WHY NOT. IF YOU ARE LIKE ME, THAT'S THE ONLY OTHER NAME IN MY HOUSE AND SHE IS LIKE A MEMBER OF MY FAMILY. SHE WILL BE 10 NEXT MONTH.
WITH ALL THE IMPROVEMENTS I HAVE HAD, I REALLY BELIEVE THAT IF I HANG IN THERE, I WILL MAKE IT (EVEN AFTER 40 YEARS). XOXOXOX BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Feb 28th, 2005 07:12 |
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Hi Barney
If the herx is intolerable.. and the Benicar 20mg Q2H is still not enough relief,
see My Herxheimer reaction is too strong. What should I do? you can take even just the one dose of mino 25mg or 50mg as per FAQ to see if it will pull it up..
and then you may need to decrease the QOD dose to 50mg ..? as the herx may be too much at 75mg just yet?
Dr Marshalls words: "No, it doesn't matter how long it takes. You have started on a lengthy jourrney, and the extra pain of speeding beyond a comfortable pace will not yield a comparable reduction in the length of the journey."
..Trevor..
ask if any questions... all best, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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BARNEY
Moderator
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Posted: Mon Feb 28th, 2005 07:27 |
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Barb,
Actually my brain was not working or I would have remembered the 20mg Benicar Q2hrs early on and it would not have gotten so carried away, but I did not remember it until afternoon and by then it had a grip on me.
I am okay now, it is tolerable and I will see what tomorrow brings, I just might go back to 50mg mino, but I did it for about a week or more and felt I needed to move on to 75mg mino. But we will pay it by ear, as the saying goes, and see how my day goes.
Somebody, I think on your site, had discussed taking the mino in the morning. That's what I did with one dose, maybe I'll try that again.
I have had so much progress: no nebulizer, none of the neck pain I used to have, no migranes, I have endured every perfume I have come in contact with (that's sweet), and I can't even remember all the things that used to hurt. Sort of out of sight, out of mind (you know what I mean, I'm sure).
Thanks for the info, Barb. XOXOXOXOXO BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Feb 28th, 2005 07:44 |
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Barney
A good way to remember may be: as soon as you have to reach for the pain relief tablets, think "do I need more frequent Benicar?..."
.. Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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BARNEY
Moderator
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Posted: Tue Mar 1st, 2005 05:28 |
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DAY 59, FEB 28, 2005, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, NO PAIN PILLS, 75 MINO TONIGHT, 1 ACIDOP
NO HERXING AT ALL TODAY.
STAYED IN ALL DAY.
MY COMPUTER GUY CAME AND PUT A NEW VIRUS CONTROL ON.
CLEANED HOUSE ALL DAY WITH LOTS OF ENERGY TO GET THINGS DONE I HAVE NOT GOTTEN DONE IN A WHILE. NOW IF IT WILL JUST STAY CLEAN.
BARB, I WAS EXPERIMENTING WITH DIFFERENT PAIN RELIEVERS YESTERDAY, HOWEVER, I DID INCREASE MY BENICAR 20MG Q2HRS IN THE AFTERNOON, BUT STILL NEEDED THE PAIN PILLS AS THEY WORE OFF. ALL IS WELL NOW.
WILL TAKE 75MG MINO TONIGHT AND AN ACIDOP. IF IT TURNS OUT TO BE INTOLERABLE, I WILL BACK OFF NEXT DOSE.
GUESS THAT'S ALL FOLKS!!! HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Tue Mar 1st, 2005 05:32 |
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Hi Barney..
thank you for posting..
re: "WILL TAKE 75MG MINO TONIGHT AND AN ACIDOP."
It may be better to take your acidoph about 3 hours or so away from the mino.. so the mino doesnt kill the live organisms..
eg. I take my pbx every morning with breakfast..
all best, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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BARNEY
Moderator
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Posted: Tue Mar 1st, 2005 05:54 |
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BARB,
YOU KNOW I WANDERED ABOUT THAT. BUT DID NOT REMEMBER READING ANYTHING ABOUT WHEN. DO YOU TAKE ONE EVERYDAY EVEN ON THE DAY YOU DON'T TAKE ANTIBIOTICS?
I WILL DEFINITELY TAKE ANOTHER IN THE MORNING. THANKS FOR THE TIP.
BOY, I CAN'T BELIEVE I ONLY HAD 4 HRS SLEEP LAST NIGHT AND ALL THE ENERGY I HAD TODAY. SLOW PACE, BUT GOT A LOT DONE AND A SHOWER TOO. EVEN PUT CLOTHES ON BESIDES MY NIGHTGOWN.(HAHA)
THAAAAAANKS BARB XOXOXOX LOVE BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Tue Mar 1st, 2005 06:03 |
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Hi Barney
Take whatever you need to make it work for you.. I take 1 per every day..
getting dressed in real clothes ! now that is a big one..
Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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spacee
inactive member
| Joined: | Sun Sep 12th, 2004 |
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Posted: Wed Mar 2nd, 2005 02:12 |
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I think the energy was a herx and I bet your postman was disappointed to see the real clothes
xoxo Spacee
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CFS/FM/tachycardia/bladder and skin inflammation. C-Diff overgrowth 1995
clonazapan 1gm HS, Xanax .50mg HS, Premarin .625, Ultram 50mg BID Restart 9/15,NoIRs, No Vit D diet,Probiotics,11/12/04 25D=25, 1,25D=70, 9/9/05 25D 14, 1,25D 37. Beni Q6H, Mino 10
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BARNEY
Moderator
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Posted: Wed Mar 2nd, 2005 03:05 |
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SPACEE,
ACTUALLY, I CANNOT TELL ANYTHING BUT THE TRUTH ON THIS SITE, SO HERE GOES;
THE ENERGY WAS NOT A HERX (I DO NOT BELIEVE), BECAUSE ABOUT MIDNIGHT OR 1AM, I REALIZED I HAD DRANK ABOUT A HALF QUART OF REAL BREWED ICED TEA THROUGHOUT THE AFTERNOON. WHEN I TOOK THE LAST DRINK, IT HIT ME, THIS IS WHY I CANNOT RUN DOWN AND GO TO BED.
MY POSTMAN IS A LADY. DARN!!! THANKS FOR THE THOUGHTS OF HERX AND WOULD BE INTERESTED IN OTHER OPINIONS SINCE ALL THE FACTS ARE NOW IN.
LOVE, BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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BARNEY
Moderator
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Posted: Wed Mar 2nd, 2005 06:03 |
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DAY 60, MARCH 1, 2005, BP 119/87 P 75, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, NO MINO, 1 ACIDO (MORN)
ON THE DAYS I TAKE MINO, I FIND I AM COLDER THAN USUAL, MY HANDS SEEM TO BE EVEN COLDER, BUT ALL OF ME IS COLD. I HAVE ALSO NOTICED ON OCCASION, MY HIP HAS HURT A LITTLE, NOTHING LIKE IT USED TO (BEFORE MP) SLEEPY MORE THAN USUAL WHEN ON MINO ALSO.
NOTHING DRASTIC THIS TIME AFTER 75 MG MINO. WOULD IT BE OKAY TO PROCEED TO 100MG TOMORROW NIGHT?
HANG IN THERE, WE WILL MAKE IT!!!!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Mar 2nd, 2005 06:35 |
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Hi Barney
from the phase 1 doc to help you to decide:
"Increase the (every other day) minocycline, slowly, in small increments. The usual dosage increment is 25mg per week. Allow a week or more between increased doses to make sure your Herxheimer reaction is not more than you wish to tolerate. Different bacteria and tissues can be targeted by different levels of antibiotics, so there is a good reason to stay at each dose until the Herxheimer is minimal.
You may take a 'break' from the antibiotics for a few days, or even a few weeks, if you need to feel better for a while. Continue to take the Benicar, however.
Do not try to 'speed up' therapy by using a higher dose of minocycline than the minimum needed to give you Herxheimer. These are very slow growing bacteria and there is no need to hurry. The dose of antibiotic that you can tolerate may change (both up and down) during the course of therapy. "
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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BARNEY
Moderator
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Posted: Wed Mar 2nd, 2005 15:56 |
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Barb,
I understand what you are telling me, but I am not having any herxing that I can tell. If that being the case, why not proceed? Would I be 'jumping over' bugs and leaving them behind to cause problems? I have made so much progress that I feel like I 'am wasting time' when I have had no herx and do not proceed. I appreciate your time. Thanks Barney
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Mar 2nd, 2005 16:03 |
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Hi Barney,
You will know your own situation and can gauge it best, and, No you wont be jumping over bugs... and if having checked the phase 1 doc, are not herxing, you feel ready to proceed that is what to do.. all good..
all the best, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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BARNEY
Moderator
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Posted: Thu Mar 3rd, 2005 06:05 |
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DAY 61 MAR 2, 05 BP 90/60 P 86, BENICAR 20MG Q2HRS, BENICAR 40MG BEDTIME, NO MINO, 1 ACIDOP
I HAVE DECIDED TO TAKE MINO TOMORROW MORNING INSTEAD OF TONIGHT. NOTHING EXCITING REALLY GOING ON. SLEPT FROM 1PM TO 4PM THIS AFTERNOON. HAD BEEN STAYING UP PRETTY LATE (2AM) THE LAST 2 NIGHTS AND THEN GETTING BACK UP AT 6AM OR 7AM AT THE LATEST. HAD NOTHING I HAD TO DO AND NO COMPANY, SO I TOOK A NICE NAP.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
|
BARNEY
Moderator
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Posted: Fri Mar 4th, 2005 04:49 |
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DAY 62 MAR 3, 05 BP 105/81 P 90 BENICAR 20MG Q3HRS, BENICAR 40MG BED TIME, 100 MG MINO, 1 ACIPOP
HIP WAS A LITTLE SORE, I'M SURE MY SHOULDERS WILL BE TOO, SOON, SINCE I WENT OUT AFTER DARK AND RAKED THE FRONT YARD WITH THE PORCH LIGHT ON. OTHER THAN THAT THE ONLY OTHER THING GOING ON IS THAT I AM SLEEPY AND WILL GO TO BED HERE SHORTLY.
HANG IN THERE, WE WILL MAKE IT!!!!!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
|
BARNEY
Moderator
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Posted: Fri Mar 4th, 2005 04:57 |
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REENIE,
I HAVE A QUESTIONS FOR YOU........WHEN READING YOUR POSTS, I NOTICED THAT YOU HAD WENT OUTSIDE BEFORE THE SUN WENT DOWN AND DIDN'T WEAR YOUR GLOVES OR A HAT. ARE YOU THAT FAR HEALED THAT YOU COULD DO THAT AND GET AWAY WITH IT (MOSTLY) OR DID YOU PAY DEARLY FOR IT? HOW DO YOU KNOW WHEN YOU CAN GO OUT (COVERED) AND NOT HAVE SUCH BAD SUN FLARES, BY EXPERIENCE OR A CERTAIN AMT OF MEDS AND TIME OR WHAT? I AM NOT TRYING TO PUT YOU ON THE SPOT, JUST NEED MORE UNDERSTANDING THAN I ALREADY HAVE. THANK YOU!!!!!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
|
Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
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Posted: Fri Mar 4th, 2005 06:00 |
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Hi Barney,
No, unfortunately, I'm not that far along, but I CAN go out, before dark, when it's still light outside, for a very short amount of time, w/o a reaction.
This is definitely very different than if I go out during the day with the sun high in the sky. THEN, I PAY DEARLY for it. 
I think it's mainly trial and error. There's no other way to really know what you can "get away with" and what you can't.
BTW, when I'm herxing, I DO NOT experiment with the light. I stay inside, in my cave and wear eye protection for the PC and TV.
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Fri Mar 4th, 2005 23:02 |
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BARNEY has been selected for a scholarship to go to our Spring Conference 'Recovering from Chronic Disease', in Chicago, our Congratulations go to BARNEY (I hope that she is still in one piece after flying from 6:45am to 4:10pm on Friday, just to get to Chicago).
..Trevor..
Barney, see FAQ: Can I stop the Marshall Protocol for awhile? while I go to the Conference?
Congratulations and all Best Wishes, take care, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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BARNEY
Moderator
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Posted: Fri Mar 4th, 2005 23:44 |
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TREVOR AND BARB,
I WILL HANG IN THERE AND I WILL MAKE IT!!! I WILL REST ALL WEEK. THANK YOU FOR THIS PRIVILIGE. TREVOR, YOU ARE A GODSENT. SEE YOU THERE!!
LOVE TO EVERYONE INVOLVED!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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