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BARNEY
Member in Phase 3
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Posted: Wed Feb 16th, 2005 03:48 |
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Barb,
I believe I now understand what you are trying to teach me.
I have to go out again tomorrow (my supply of Benicar is getting low). So I will take 20 mg Benicar q2hrs all day tomorrow until midnight and then I will take 40 mg. I will also skip minocin tomorrow night and wait until the next day for the light exposure to be gone. Am I thinking correctly?
This should be the last day this week I should have to go out for light exposure, I hope. I guess while I am out I should pick up more minocin. Only a few caps left.
I will try to get everything while I am out tomorrow.
Thanks Barb. xoxo Barney
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19372 |
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Posted: Wed Feb 16th, 2005 03:54 |
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| Barney, sounds good.. less natural light / bright light the better.. Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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BARNEY
Member in Phase 3
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Posted: Wed Feb 16th, 2005 03:59 |
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Barb,
Thank you for all your help. I think I have a better understanding of all.
My eyes are telling me to get off the computer so goodnight dear friend. ttyl Barney xxooxox
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19372 |
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Online
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Posted: Wed Feb 16th, 2005 04:11 |
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I have to check that your computer screen brightness & contrast is turned down? and that you wear NoIRs at pc too?
havagoodnight Barney, Barb ..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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BARNEY
Member in Phase 3
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Posted: Thu Feb 17th, 2005 01:05 |
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Aussie Barb,
I think you misunderstood what I meant when I said my eyes were telling me to get off the computer and go to bed.
I meant they were heavy with sleep, not that the computer was bothering my eyes. It was like 1 am and I had been up since 6am. So I was getting pretty tired. Sorry for the misunderstanding. xoxox Barney
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
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BARNEY
Member in Phase 3
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Posted: Thu Feb 17th, 2005 01:15 |
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DAY 47 FEB 16, 2005 BP 132/96 P 79 BENICAR Q2HRS 20 MG AND 40MG AT BEDTIME
Did as Barb and I discussed last night since I had to have sun exposure today for about 3 hours to go get meds and run a couple other errands.
The main things I feel when I have extended sun exposure are: my face feels 'puffy' and my eyes feel 'swollen or puffy'. this lasts a few hours and fatigue. My eyes hurt while I am out in the sunlight. I not only wear my NOIRs for outside but I also wear presc glasses that are darkened also. Shoulders have not hurt this time but I also have not had more minocin. I covered up well.
We will see what tomorrow brings and I may take 50 mg minocin tomorrow night if all goes well from exposure. I have been up since 5:30am. I just can't seem to sleep in. So I guess I will bid farewell and good night /go to bed.
Hang in there, we will make it!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19372 |
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Posted: Thu Feb 17th, 2005 01:33 |
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Barney
it is so good to see you being able to ID what the light exposure does to you as an individual.... and then knowing what to do to protect yourself .....
phase 1 is the training ground for all this.. a time for us to learn how to adjust our lifestyle and meds and all.... ready for # 2....
all good, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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BARNEY
Member in Phase 3
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Posted: Thu Feb 17th, 2005 12:57 |
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Barb,
I am ready for almost anything that will make me well. #2? I thought I had to be on 100 mg mino first? Am I misunderstanding when to proceed? Let me know what I need to do and I'll do it. More light exposure sxs are next day getting up at 5 or 5:30 and feeling great and abundance of energy and then within an hour feeling like I need to go to bed and sleep the rest of the day. Shoulder and back pain, not to bad after a pain pill and warm rice sox, but nonetheless there. I always hate myself after I go out.
I do have a question=== grapefruit is one thing that does not normally bother my sugar level. But...I have read in magazines that if you take a blood pressure medicine that grapefruit can interfer with the medicine. Since we do not take Benicar for the reason of high blood pressure....would this still be the fact? Should I or should I not eat grapefruit because of the Benicar? Will it interefer with what the Benicar is doing for us? THANKS BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19372 |
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Posted: Thu Feb 17th, 2005 15:00 |
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Barney
I said "phase 1 is the training ground for all this.. a time for us to learn how to adjust our lifestyle and meds and all.... ready for # 2...."
meaning phase 1 training time is getting us all ready for managing phase 2 better.
I will look into the other and someone will get back to you..
Barb ..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Dr Trevor Marshall
Research Team
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Posted: Thu Feb 17th, 2005 15:08 |
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Barney,
Grapefruit interferes with digestive enzymes, and prevents some drugs from being absorbed properly. Your pharmacist could look up if there are any known effects on Benicar absorption, but in general it is a good idea if you only eat/drink grapefruit either 2 hours before, or 2 hours after, you take any medications.
..Trevor..
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BARNEY
Member in Phase 3
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Posted: Thu Feb 17th, 2005 15:36 |
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Trevor & Barb,
Thank you for your replies about both subjects. I will give that grapefruit I have been hoarding in the crisper for quite some time (afraid to eat it), to someone else who is not on BP meds, if I can find that person. I don't think I know anyone who is not on BP meds. THANKS!! Barney
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
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BARNEY
Member in Phase 3
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Posted: Fri Feb 18th, 2005 00:37 |
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DAY 48, FEB 17 2005 BP 118/71 P 84 20MG BENICAR Q3HRS, 40MG BEDTIME, 50 MG MINOCIN
Found out that there is a next day sx of sun exposure, I get up at 5 or 5:30 am filled with energy, have breakfast, sit down to watch the news and start to fall back to sleep and am very willing to get in bed and sleep till noon. Then the rest of the day is good. I start to feel the security of my cave again and am very glad I do not have to go out in the sun again. Hoping I can stay in for at least a week.
Going to take 50 mg minocin tonight before I go to bed.
Have been doing some good deeds tonight and feeling like I am floating on clouds for doing them.
Got up to a clean kitchen this morning, can't say as much for bedtime. Oh well, we all have to eat and that requires dirting dishes (and darn, washing them too)
Getting sleepy, and I can't think of anything else I need to post tonite. Barney
PS Trevor..I just gave my friend the grapefruit, no need for having a problem if you can prevent it.
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
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BARNEY
Member in Phase 3
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Posted: Fri Feb 18th, 2005 23:12 |
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DAY 49 FEB 18, 2005 BP 131/77 P82 20MG BENICAR Q3HRS, 40MG BEDTIME PLUS 50MG MINOCIN, 1 ACIDOPHILUS CAP.
Went to bed and could not sleep. I do not do well just lying in bed waiting to go to sleep. Got back up and played on the internet until 2am.
Took an acidophilus (refrig) because stomach started to get quiesey (sp?).
Went to bed at 2am and went right to sleep, slept well all night, did not get up until 8:30am, took a nap from 1pm to 3pm. After sundown, my dog and I walked (slowly) for about 3/4 mile down the road. Felt good, it has been too cold to walk after dark this winter and I used to walk 1-2 miles a day. Really have missed it. I never walk fast because I have pulmonary fibrosis and pulmonary hypertension. If I walk to fast, I run out of air. Walking slow is just fine.
I definitely do not enjoy pain, but was disappointed with basically no herx from 50 mg minocin. This is my second 50. Do I need to up to 75 or stay a little longer at 50? I don't want to be uncomfortable but I thought we should have some herx.
I had been drinking a Christmastime tea from Celest Seasonings and did feel that it was affecting my blood glucose levels (something was). I was drinking too much, I guess. I stopped it all together along with the green tea/cinnamon and my levels are back in control. Amazing what can affect them. ADA said cinnamon would help lower readings, of course my body always does the opposite.
Guess that's all for now.
Hang in there, we will make it. Barney
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19372 |
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Online
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Posted: Fri Feb 18th, 2005 23:38 |
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Hi Barney
re tea>> here is a post > Benefits of Green Tea
re should I ramp..? Dr M likes us to stay on a dose level for a week herxing or not before ramping, just in case..
the other thing is that light and or D exposure can make a difference..raising the 1,25D: you have had some light symptoms, so if you'd like to give it a couple of doses yet after your going outs, to see if it will key in again?
this is a FAQ re no herx: Why isn't the Marshall Protocol working? what am I doing wrong?
all best Barney, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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BARNEY
Member in Phase 3
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Posted: Sat Feb 19th, 2005 01:10 |
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Barb,
My stomach gets really upset from green tea (and regular tea). I used green tea to make my cinnamon tea. Green tea plus a cinnamon stick. That is part of the rise in blood glucose and the Christmastime Celes Seas tea. I'll try straight green tea one more time and see if my stomach hates me.
I was not having problems from the light experience by early evening so I thought I would be okay to take the 50mg Minocin.
I will stay on 50 mg Minocin for the next few days and I will not be going out except after dark. I will take 50 mg Minocin tomorrow night. Will rethink my food but have been watching that closely.
We will see what happens! Barney (best to you, Barb)
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19372 |
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Posted: Sat Feb 19th, 2005 01:18 |
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oohh Barney
I am not recommending green tea .. just pointing to the topic as you mentioned it.. dont go against what suits you personally..
you have done all well re the light issue, sometimes all else that is needed is time for the 1,25D to go down again..
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
| Posts: | 3373 |
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Posted: Sat Feb 19th, 2005 01:45 |
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Hi BARNEY,
Interesting you mentioned cinnamon. Cinnamon is known to help stabillize glucose levels. I add cinnamon to oatmeal and don't use any sweeteners w/it. 
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BARNEY
Member in Phase 3
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Posted: Sat Feb 19th, 2005 09:21 |
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Barb,
I have not tried green tea by itsself since I have been on MP and things have changed so greatly for me. Able to endure smells, no headaches, no neckaches etc. maybe just maybe I can now drink green tea. We will experiment and see what happens.
What is the max amount of time for most when the I,25D does finally go down from light exposure? Thanks Barney
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
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BARNEY
Member in Phase 3
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Posted: Sat Feb 19th, 2005 09:29 |
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Reenie,
I wish that were true for me. I was putting cinnamon in my green tea and my glucose levels were in the 200 and 300. I knew there was something bothering me, because I try to be real good about my food. I stopped all tea drinking and my levels went right back down and stayed.
My body always seems to do the opposite that the medical people say should happen. I always figured it was the sarc and adjusted accordingly.
Do you consider oatmeal to be low gylcemic? I went online and pulled up probably 7 different low glycemic tables and there were not two with the same numbers. Very discouraging when facts do not match. It even said Pizza Hut Supreme pizza was low glycemic and yet when I used to eat it, it would run my reading thru the roof. It seems with this body, I just will have to experiment with everything to see what it will do. glucose levels are down and staying there.I am basically low carb. Thanks Barney
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19372 |
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Online
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Posted: Sat Feb 19th, 2005 15:44 |
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Dear Barney
The green tea topic says that it may have *some* effect, and I thought you may relate.. as you say your body is sensitive.. and that is because you are sick. so yes you do have to experiment for yourself.. look at what is said anywhere (re carbs too) and then see how it works for you.. and let that be your guide.
same with the light re the time and the 1,25D.. that would be individual.. it can take a *couple of days* to re establish the inflammatory blockade .. Meg says: "The inflammatory blockade will be reestablished in a day or two."
The good thing about your being sensitive is, that you have responded positively to MP very quickly. and of course as the healing increases the sensitivities do diminish; as you have experienced already..
all best on your Journey of Discovery Barney, Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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